(3) 21 Down syndrome Blog Hop!

This blog hop is a community project of Down syndrome Blogs and the T21 Alliance. The code is set up so that everyone can participate by adding their link to their post – and host if they want, by adding the code to their own post! So, just follow the instructions through the linky tool (below)

(3):

One truth (about Ds/our lives with Ds)

One tip (- information on something related to Ds/raising a child with Ds/or just parenting in general)

One photo

*****

One truth:

I’ve never cared much if Moxie will learn to talk.

What I do care about – and have always cared a lot about – is her ability to communicate. I want to be able to understand her and I want her to be understood. I also want her to have a language that she can excel in.

Since speech tends to be a difficult area for people with Down syndrome, and since I’ve seen many people with Down syndrome sign gorgeously, I have wanted to focus on something that I felt sure she would easily be skilled in, rather than focus exclusively on something she would really struggle with and find frustrating.

So my truth here is that I have laid more importance on signing with Moxie than I have with speech.

One tip:

Moxie is fearless with heights and she’s an avid climber. She climbed right out of the crib before she could walk.

So we followed what another friend with a child with Ds was doing and just placed Moxie’s mattress directly on the floor (we took an Ikea kura bed and flipped it over, bunk-style, putting the mattress where a play space would normally be). It’s worked out wonderfully.

** note: She also has sleep apnea and moves constantly throughout the night, so we also set up big cushions around (the mattress, against the walls) so that she also has the option of easily sleeping upright (face forward) on one of them.

 

One Photo:

photo 2


Meriah
Meriah Nichols is teacher and artist who lives in a yurt off the grid. She is deaf, has 3 kids (one with Down syndrome) and a lot of chickens. She writes about travel, disability, and getting dishes done. She likes her tea Earl Grey and hot.
Meriah

@meriahnichols

#deaf mom, teacher & #disability activist, living in a yurt #offthegrid. 3 kids (1 with #downsyndrome), a camera and a lot of chickens. Never a dull moment
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