Blog Posts

It Took a Deaf Lady in Budapest

This is a photo-heavy travel post about Budapest I was fascinated by so much that I saw in Budapest. The grocery stores, markets, food gyros! cheetos! holding that marzipan my kids were so excited something something? meat at the market breads at the mini market hungarian langos hungarian chipschips some kind of ice cream such

Susie, Budapest, and Getting My Ass Kicked

This is a travel post about arriving in the train station Budapest and finding our way to the Air B n' B through public transport. Budapest dazzled and intrigued me as we stepped off the train at the Kaleti station. Like a glorious glass lace building, it’s arches soared and sunlight poured in. It was

On the Night Train to Budapest

This is a travel post about taking the sleeper train in Europe (from Utrecht in the Netherlands to Budapest, Hungary) There was a change in plan. My mom, whom we were going to meet at Nijmegen, Netherlands after her conference was finished, had to delay her departure from the US. That meant that the kids

Disability Access in Holland

This is a travel post about physical access in Holland (the Netherlands). It includes opinion about Dutch euthanasia, eugenics and the differences between the Netherlands and the United States with regard to disability rights and access. You know how you don't really miss something you've never had? Like, you kind of bumble around life, stumble

Welcome to Holland

This is a travel post. In the Down syndrome community, there is a famous missive called, "Welcome to Holland." It was written in the 80's by Emily Perl Kinglsey (who was a writer at Sesame Street - you can thank her for a lot of the inclusion that went on there). A lot of people

Disabled Moms Interview Project with Sandi Parsons

Disabled Moms: An Interview Project In honor of Mother's Day, I started running an interview series with other moms with disabilities. It was originally intended just for the month of May, but it will continue as long as I get new interviews with cool moms with disabilities! This interview with Sandi Parsons is available in

Have Disability, Will Travel

We're leaving for Europe soon.  It occurred to me recently that this is kind of funny, with regard to disability. All of us except for one person (- Mack, my youngest child), has a disability! We've got my mom, who has an Acquired Brain Injury, PTSD, post concussion syndrome and dizziness and balance issues (related

Disabled Moms Interview Project: Featuring Lorna Duff-Howie

Disabled Moms: An Interview Project In honor of Mother's Day, I'm running an interview series with other moms with disabilities throughout the month of May. This interview with Lorna Duff-Howie is available both in distraction-free pdf and through my podcast at the end of this post. If you are a mom with a disability and

You Ask, I Answer: How Can You Talk About Mental Illness?!


A Short Film About A Man with Down Syndrome Exploring Tokyo Pushes Boundaries

This is a blog post about "Shakespeare in Tokyo" - a short film about a man with Down syndrome exploring Tokyo. The short film is also linked in full within the post so that you can watch it here! I first moved to Tokyo when I was 15 years old. I moved to Tokyo as

Mom Talk: Disabled Moms Interview Project Featuring Pauline Victoria

Disabled Moms: An Interview Project In honor of Mother's Day, I'm running an interview series with other moms with disabilities! I went first with my own interview (linked here, which includes the podcast and distraction-free PDF). If you are a mom with a disability and would like to participate, please download the questions here, and

On a Blue Butterfly We Will Fly

This is a post about missing my brother Dana, and birthdays. When you have lost someone you love, I think it's impossible to move through the world the same as you did before you lost them. Everything takes on new meaning - the feather that you see by your foot, the rainbow that bursts from

My Podcast is Live!

I started a "podcast" - which is really just me reading my posts into a microphone and making an MP3 out of it. It's kind of fun doing it.  I loaded it on to iTunes and they actually approved it for public consumption! So you can listen or subscribe or whatever it is that people

Why I Want to Start a Cat Sanctuary Now

This is a post about why I want to start a Cat Sanctuary now. There are many photos in this post, which I have described in the alt-tags. This post is not available in PDF, but a version of this will be available in my podcast. There is a vlog at the end of this

What People First Language Is (& Why and When It’s WRONG)

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