Expecting a Child with Down syndrome?

Five years ago, I was expecting my daughter, Moxie.

Having had an amnio, I knew she was coming with Down syndrome. I suppose my background in disability should have made it easier, same goes for my being deaf and having TBI, PTSD… but it didn’t.

I locked myself up everyday in my offices either at work or at home, and spent countless hours scouring the internet in hope of finding information that would point to a life that would not be bad, either for our daughter or for ourselves.

I wanted pictures. I wanted  stories that I could connect with. I wanted groups. I wanted mentors. I wanted friends who understood.

Now you are here, and if you are here because you googled “Down syndrome” or “expecting a child with Down syndrome”, I want you to find what you need.

Here are some links that will hopefully help.

My free e-book

“4 Years” is a collection of essays from this blog, covering Moxie’s diagnosis, what to say to me (when you hear I have a child with Down syndrome), fear, the choice to suffer, the choice to keep a child, learning to run, speaking, abuse, breastfeeding, “more alike than different”, siblings, learning to have courage and more.

142 pages with lots of photos and artwork by me.

e-book from i-tunes (this is the nicer format but it can only be read using an i-device)

pdf version (can be read anywhere, on any device)

Stories:

Expecting the Unexpected: stories from families, broken down by category (free pdf book)

Down syndrome Pregnancy: if parents could say something to themselves when they received the news… (short stories on the website)

Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives
(actual book compilations of stories purchased through Amazon or elsewhere)

Very Useful Sites:

Down syndrome Pregnancy

Down syndrome Diagnosis Network

Baby Center (- the Down syndrome Pregnancy group and Down syndrome group)

Blogs

Down syndrome Blogs – blogs by sub-category

A Day in the Life with Down syndrome – read about a day lived in a life with Down syndrome. A community space, posts from a wide variety of families and individuals.

 

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You are not alone. Please contact me if I can help in any way.

Meriah
Meriah Nichols is teacher and artist who lives in a yurt off the grid. She is deaf, has 3 kids (one with Down syndrome) and a lot of chickens. She writes about travel, disability, and getting dishes done. She likes her tea Earl Grey and hot.
Meriah

@meriahnichols

#deaf mom, teacher & #disability activist, living in a yurt #offthegrid. 3 kids (1 with #downsyndrome), a camera and a lot of chickens. Never a dull moment
@Mediadisdat thanks! I hope they have #deaf stuff too! - 58 mins ago
Meriah