15 Awesome Disability Related Organizations

15 awesome disability related organizations
#GiveTheFuture, a new site with direct links to organizations worth supporting, and my own list of 15 awesome disability related organizations

I was crafting out a post with links to great disability-related organizations that further disability rights, but then #GiveTheFuture came around and is absolutely fantastic.

Check it out:

1. #GiveTheFuture

They have direct links to organizations that I was going to link in my own post – namely, DREDF – which is always at the top of my list, as it goes across the disability spectrum, helping to protect all of us with disabilities.

#GiveTheFuture also includes the Autistic Self-Advocacy Network, HEARD (Helping to Educate and Advance the Rights of the Deaf), Sins Invalid and ADAPT. It’s a short list, and an excellent one. Please check it out – #GiveTheFuture .


Here are some more organizations that I think are fantastic, and that are 501 (c) 3’s:

2. Council of Parent Attorneys and Advocates: I just found out about this organization! Holy cow, where have I been?! Super awesome. Check it out.

3. Yo! Disabled and Proud: Love, love, love them and their work, empowering youth with disabilities. They have a rad store too (I just had to edit my Gift Guide so that I could include it).

4. Disability Rights Advocates: These guys are wonderful. They are the ones who sued Target over access – and won.

5. Language Acquisition and Equality Project for Deaf Kids (LEAD-K): as a deaf woman, I absolutely must mention this. There is a crisis in the deaf community over deaf-education and our kids learning ASL (or rather, not learning ASL, not having exposure to language they can understand). Nyle DiMarco is also trying to raise awareness over this and funds to help LEAD-K with it’s work.

6. Senior and Disability Action: organize and empower seniors and people with disabilities on housing, health care, transit justice, and more.

7. Bookshare: an accessible online library for people with print disabilities. Like my friend who recommended this said, “I can’t get far without information.”

8. Learning Ally: a national organization “dedicated to bringing parents, teachers and the community together to empower students who are dyslexic, blind or visually impaired to succeed.”

But there are more organizations 

Most people want to donate to an actual non-profit, with legal non profit status, but some of the most cutting edge projects are not certified 501 (c) 3’s .

9. The Disability Visibility Project is a great example – Alice Wong is doing fantastic work with the #CripTheVote project and in gathering people across the disability spectrum under her fold. That project isn’t “certified” but it’s very worthy, and something worth contributing to. Here’s where you can donate.

10. Disabled Parents Rights is another one. “Disabled Parents Rights is a small organization dedicated to combating discrimination that impacts parenting for parents with disabilities. We provide direct representation, advocacy, and technical assistance to disabled parents, as well as their advocates and attorneys.” As a deaf mother (with TBI and PTSD), this hits home.

11. Southerners on New Ground (SONG) – they seem to be an organizing-for-change group, and are led by disabled people of color. They have a toolkit for change and work on advancing the rights of some very vulnerable people in the south right now. They are going to need help in the coming future.

There are also some very deserving disability-specific and parent-led organizations out there. Here’s a short list of a few that I have connections to:

12. Lettercase: I’ve loved them forever (remember this post?!) You know why? Because my husband and I were once literally sitting at a table with a doctor telling us that we should abort our unborn child because she was going to be coming with Down syndrome. When my husband and I asked him for more information about lives lived with Down syndrome – a brochure? meet someone? See what Down syndrome is like? The doctor said, “we don’t do that.”

Lettercase is trying to change that all-too-common scenario by putting accurate and up-to-date information in the hands of medical practitioners. It’s fabulous and very worthy of your money. Donate here.


13. Down syndrome Diagnosis Network: A grassroots parent-led group that connects and supports. Good people, good work.

14. Down syndrome Adoption Network: Fantastic work connecting families who want to adopt a child with Down syndrome with a child with Down syndrome. Shoe-string budget, run mostly on the sweat of a couple of women.

15. Ruby’s Rainbow: “dedicated to the higher educational needs of adults with Down syndrome.” They provide scholarships to adults with Down syndrome who are seeking post-secondary education, enrichment or vocational classes. This is fantastic since so few programs do that.


My friend Andrew wrote a great post on “How to Choose a Disability Charity” – he’s got some great suggestions on things to think about as you move forward and select the organization (s) that you would like to support.

If you know of more great organizations or movements  to give to, PLEASE leave the link in the comments of this post so that everyone can read and learn of new and cool places to support.

Thank you.


is a deaf blogger, global nomad, tech-junkie, cat-lover, Trekkie, Celto-Teutonic-peasant-handed mom of 3 (one with Down syndrome and one gifted 2E).
She likes her coffee black and hot.
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