Organizations Doing Fantastic Work with Disability

organizations doing fantastic work with disabilityHere are some more organizations that I think are fantastic, and that are 501 (c) 3’s:

Disability Rights Advocates: These guys are wonderful. They are the ones who sued Target over access – and won.

Disability Rights Education and Defense Fund: The leadingg national civil rights law and policy center, directed by people with disabilities and parent who have children with disabilities (I am a board member; please give them your money, love and time because they do more than you know).

ADAPT: A national grass-roots community-based organization that leads disability rights activists in nonviolent action to ensure that we all have freedom and access. The Medicaid protests? That’s them.

Autistic Self-Advocacy Network: a national grassroots disability rights organization, by and for the Autistic community.

Council of Parent Attorneys and Advocates: I just found out about this organization! Holy cow, where have I been?! Super awesome. Check it out.

Yo! Disabled and Proud: Love, love, love them and their work, empowering youth with disabilities. They have a rad store too (I just had to edit my Gift Guide so that I could include it).

Disability Rights Advocates: These guys are wonderful. They are the ones who sued Target over access – and won.

Language Acquisition and Equality Project for Deaf Kids (LEAD-K): as a deaf woman, I absolutely must mention this. There is a crisis in the deaf community over deaf-education and our kids learning ASL (or rather, not learning ASL, not having exposure to language they can understand). Nyle DiMarco is also trying to raise awareness over this and funds to help LEAD-K with it’s work.

Senior and Disability Action: organize and empower seniors and people with disabilities on housing, health care, transit justice, and more.

Bookshare: an accessible online library for people with print disabilities. Like my friend who recommended this said, “I can’t get far without information.”

Learning Ally: a national organization “dedicated to bringing parents, teachers and the community together to empower students who are dyslexic, blind or visually impaired to succeed.”

American Association of People with Disabilities: more of a general clearinghouse of information

National Council on Disability: cross disability information, other information too

H.E.A.R.D. (Helping Educate to Advance the Rights of the Deaf): Working towards access in the legal system

Sins Invalid: A performance project that incubates and celebrates artists with disabilities


WID: World Institute on Disability

CIL: Center for Independent Living – where it all started. fantastic information on housing, benefits, rights and more

Through the Looking Glass: for parents with disabilities as well as children with disabilities

Disability Rights California (formerly Protection and Advocacy, Inc): CA specific but still with excellent cross-disability and cross-state information

Mobility International: for travel/disability/exchange/education information

JAN: Job Accommodation Network – A-Z of disability and accomodation

ODEP: Office of Disability Employment Policy: disability and job information (for a government site, this is actually pretty good) Also a good, cross-disability site with a ton of information

But there are even more fantastic organizations 

Most people want to donate or contribute to an actual non-profit, with legal non profit status, but some of the most cutting edge projects are not certified 501 (c) 3’s .

The Disability Visibility Project is a great example – Alice Wong is doing fantastic work with the #CripTheVote project and in gathering people across the disability spectrum under her fold. That project isn’t “certified” but it’s very worthy, and something worth contributing to. Here’s where you can donate.

Disabled Parents Rights is another one. “Disabled Parents Rights is a small organization dedicated to combating discrimination that impacts parenting for parents with disabilities. We provide direct representation, advocacy, and technical assistance to disabled parents, as well as their advocates and attorneys.” As a deaf mother (with TBI and PTSD), this hits home.

Southerners on New Ground (SONG) – they seem to be an organizing-for-change group, and are led by disabled people of color. They have a toolkit for change and work on advancing the rights of some very vulnerable people in the south right now. They are going to need help in the coming future.

There are also some very deserving disability-specific and parent-led organizations out there. Here’s a short list of a few that I have connections to:

Lettercase: I’ve loved them forever (remember this post?!) You know why? Because my husband and I were once literally sitting at a table with a doctor telling us that we should abort our unborn child because she was going to be coming with Down syndrome. When my husband and I asked him for more information about lives lived with Down syndrome – a brochure? meet someone? See what Down syndrome is like? The doctor said, “we don’t do that.”

Lettercase is trying to change that all-too-common scenario by putting accurate and up-to-date information in the hands of medical practitioners. It’s fabulous and very worthy of your money. More info or donate here.

Down syndrome Diagnosis Network: A grassroots parent-led group that connects and supports. Good people, good work.

Down syndrome Adoption Network: Fantastic work connecting families who want to adopt a child with Down syndrome with a child with Down syndrome. Shoe-string budget, run mostly on the sweat of a couple of women.

Ruby’s Rainbow: “dedicated to the higher educational needs of adults with Down syndrome.” They provide scholarships to adults with Down syndrome who are seeking post-secondary education, enrichment or vocational classes. This is fantastic since so few programs do that.


My friend Andrew wrote a great post on “How to Choose a Disability Charity” – he’s got some great suggestions on things to think about as you move forward and select the organization (s) that you would like to support.

If you know of more great organizations or movements  to give to, PLEASE leave the link in the comments of this post so that everyone can read and learn of new and cool places to support.


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