Today is Spring Equinox. It’s Persian Naw Ruz and Baha’i New Year – it’s the end of the month-long Baha’i annual Fast.
Today is a day of celebration across cultural and religious lines, no more so than in the Down syndrome community. For those of us who love someone with a little extra, it really is a day in which we are grateful.
I’m typing this while we are driving. We are headed north, cactus and mesas flying by. The road ahead shimmers from the heat. I feel intensely grateful in this moment for everything – for all of the chapters in our story thus far.
All of them.
And that especially includes Moxie.
If someone asked me now if I’d like to take her extra chromosome away, remove her Down syndrome, I would say no, as would Mikey. We love Moxie exactly as she is, we feel she could not be more perfect.
We love her spirit, independence, her fierceness. Her intelligence. Make no mistake about it: there is a big difference between having an intellectual disability and being stupid – like most people with Down syndrome, Moxie is noone’s fool. She learns differently and in her own time – but learn, she does.
Sometimes I feel like I’ve written my fill of Down syndrome, that there isn’t anything more I could say. Experiencing this disability as intimately as we do, this disability of which so little is known, that has such a myriad of expressions, is similar to parenting in general. You think you know something about it then bam! It all starts fresh again. You parent a kid with a disability that is different from your own and bam! It’s all new.
Today is the day we are celebrating. I’m going to give you some of my favorite posts that I have written on Down syndrome:
What to Say (When You Hear My Daughter Has Down syndrome)
Happy, happy 3.21. Happy Naw Ruz, happy Spring Equinox, and oh, what a happy day that celebrates the people we love with three copies of the twenty-first chromosome: 3.21!