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3.21

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Today is Spring Equinox. It’s Persian Naw Ruz and Baha’i New Year – it’s the end of the month-long Baha’i annual Fast.
Today is a day of celebration across cultural and religious lines, no more so than in the Down syndrome community. For those of us who love someone with a little extra, it really is a day in which we are grateful.
I’m typing this while we are driving. We are headed north, cactus and mesas flying by. The road ahead shimmers from the heat. I feel intensely grateful in this moment for everything – for all of the chapters in our story thus far.
All of them.
And that especially includes Moxie.
If someone asked me now if I’d like to take her extra chromosome away, remove her Down syndrome, I would say no, as would Mikey. We love Moxie exactly as she is, we feel she could not be more perfect.
We love her spirit, independence, her fierceness. Her intelligence. Make no mistake about it: there is a big difference between having an intellectual disability and being stupid – like most people with Down syndrome, Moxie is noone’s fool. She learns differently and in her own time – but learn, she does.
Sometimes I feel like I’ve written my fill of Down syndrome, that there isn’t anything more I could say. Experiencing this disability as intimately as we do, this disability of which so little is known, that has such a myriad of expressions, is similar to parenting in general. You think you know something about it then bam! It all starts fresh again. You parent a kid with a disability that is different from your own and bam! It’s all new.
Today is the day we are celebrating. I’m going to give you some of my favorite posts that I have written on Down syndrome:
 
What to Say (When You Hear My Daughter Has Down syndrome)
Top 5 Reasons I am Happy My Kid Has Down syndrome
Learning to Run
I Never Knew I Wanted a Child with Down syndrome
Disability & Star Trek
Be Not Scared
Choosing Moxie
Vials of Moxie
and a new post… A Day in the Life (of a Traveler with Down syndrome)..which is a part of the Blog Hop going on right now over at Down syndrome Blogs – read more there!

 
Happy, happy 3.21. Happy Naw Ruz, happy Spring Equinox, and oh, what a happy day that celebrates the people we love with three copies of the twenty-first chromosome: 3.21!
 
 

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Jared

Saturday 22nd of March 2014

Hi Meriah, I was brought to your blog by your comment on the Happy Soul Project post "what makes you different is what makes you beautiful." Love your perspective. My wife and I have worked for years as caregivers and are in the process of adopting out of the foster care system here in Vancouver, BC. Nothing irks us more than "inspiration porn", as you put it in your book review. Many people notice disabilities because of difference. I've committed my life to this work because everyday I'm reminded of sameness, I'm totally fascinated by it. Thanks for your voice!

Meriah

Saturday 22nd of March 2014

thank you SO MUCH for your comment! I hope to get to know you and your wife. I have always loved the thought of adopting out of the foster care system - I was shocked when I checked it in the US right before I had baby #1 (and was planning on foster/adopt as a single parent) - sooooooooooo, soo, sooo many kids. Even more with disabilities. I remember pages and pages of photos with names and bios and it was just heartbreaking. I'm glad I'm in good company in noticing the sameness of us all. :)

Celebrating World Down Syndrome Day and Baby Kick Day! | The Spicy Catholic

Friday 21st of March 2014

[…] for some down home, real life adventures with a gorgeous little girl called Moxie with DS, just head on over to Meriah’s […]

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