The 365 Days with Disability Project - #365dayswithdisability

365 days with disability - #365dayswithdisability

365 Days with Disability – #365dayswithdisability – is the Instagram-based photo project that seeks to normalize disability, one gloriously mundane photo at a time!

Read the posts below – this one in particular – for more information about 365 Days with Disability and how to participate, then scroll further down to see a sampling of some of the photos hash tagged #365dayswtihdisability on Instagram.

365 days with disability

365 Days with Disability: Features

The 365 Days with Disability - #365dayswithdisability project - has over 4,000 photos tagged to it now, and has received participation and interest all around the world. As more people join in, I find myself thrilled that it's taking off and absolutely fascinated by the photos and diversity of the disability community. We truly do

365 days with disability: the instagram based project that is by and for the disability community

#365dayswithdisability – We’re Everywhere; Join Us

People with disabilities are all over the world, living awesome, mundane lives

365 Days with Disability

365 days with disability – hash tagged #365dayswithdisability – the Instagram based photo project that is by and for the disability community

#365dayswithdisability

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💚”No matter what life gives you, give more back”💚 C E R E B R A L P A L S Y Awareness Day 2019 .
I’m #1of17million
For me, growing up with the CP wasn’t the easiest at times. I did not want to be “different” and I struggled with my identity as a person with a disability. .
These days, I’ve learnt, I am who I am. I’m only on this earth once so while I allow myself to have “off-days”, on the other days I’m going to live the heck out of life.
Know your worth, then add tax 💚
#1of17million #gogreen4cp #cerebralpalsyawarenessmonth💚 #cerebralpalsyawareness #cerebralpalsyawarenessmonth #nationalcerebralpalsyawarenessday #cerebralpalsyawarenessday #cpawareness #cpadvocate #cerebralpalsy #spasticcerebralpalsy #cpwarrior #cplove #cpstrong #cppride #cerebralpalsywarrior #supportcerebralpalsy #cerebralpalsystrong #cerebralpalsylove #palsypower #cplife #wheelchairlife #wheelchairgirl #365dayswithdisability #lifegoesonwheels #daretobedifferent #diversitymatters #diversityandinclusion

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Thanks to andrewgurza for an amazing challenge!
#disabledpeoplearehot
Photo by #jamescurtisbargerphotography
#DisabilityVisibility #visibledisabilities #invisibledisabilities #accessibilitymatters #wheelchairlife #wheelchairdance #atl #arts #365dayswithdisability #artistoninstagram #lifegoesonwheels #artinmotion wheellifestories global_dance_network galaxiesdance #Atlanta #dancerslife danceabilityinternational atldancecollective #awesomedisability #disabilitydanceartistry thisisthewheellife wheelchairlifestories #thedisabilitycollection #disabledwomenthrive
thespooniesisterhood
Oath GettyImages
https://twitter.com/OjiDannelley/status/1097902523703283717

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“For me, disability is a way of getting some extremity, some kind of very difficult situation, that throws an interesting light on people.” -Mark Haddon
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I think when we are confronted by someone/something different we immediately go into protective mode. We inherently fear what we don’t know which leads to ignorance & even hatred.
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There are some innate practical reasons for fear. Fear promotes survival in humans & animals. In evolution those who fear the right things survived & passed on their genes. In this response the trait of fear was selected as beneficial to race survival. While this works for animals, humans are no longer running in fear of the wild. .
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While fear is instinct based, it’s also produced through conditioning. Our environment, media, society or those in power can condition us how to fear & what to fear. Our reasoning is often powerless against the fear of unknown or fear we’ve never even experienced.
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When people initially see me & if they have limited experience with disability, I sense an element of fear. They don’t know what to say so there’s a good roll of the dice their initial fear will cause ignorance vomit. They fear what’s different, they fear saying the wrong thing, they may even fear the image of a “weak body”. Perhaps it confronts mortality; a difficult subject for many. Whatever the initial discomfort, I constantly feel like it’s my job to make them comfortable so they’ll open up to the fact that I am no different than them. .
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I like unique stories & “odd people”. I like those who are different, live outside the norm for that tells me they’ve grappled their fear in being different & instead let their curiosity lead. .
My reaction to differences is curiosity; a new perspective to learn. I want to know the truth. I want to know all perspectives even if it conflicts with what I thought I knew. .
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We should see differences as perspective currency. So before you fear someone different, remember differences are an opportunity to learn & grow. I am the same person I was before this disability. Scratch that. I’m better. We humans get better with every unique experience & perspective we put ourselves into. #reeveseeus

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This is me, a disabled woman lugging around three bundles of flowers at our farmer’s market. I tend to think of my body as full of nuanced, contradictory stories (the joy/drain I felt carrying these flowers through crowds — the feeling of stares/sun on my skin). I defy oversimplification. But I’m also a body full of data points that make statistics. I’m 32. Disabled. White. Born in the U.S. Female. Currently employed. All identifiers that slide into bigger patterns. Since I was nine, sitting with my dad at our kitchen table in tears over math problems I couldn’t figure out, I’ve avoided numbers. I prefer the land of stories, where feelings and subjectivity reign. But recently, it’s the weirdest feeling in my brain, I’ve been marveling at the numbers. I found this study through Cornell that essentially provides a bunch of disability statistics, like un/employment, education, poverty rates (all within the U.S.). The most fascinating bit to me is that the website allows you to adjust the parameters of the stats by changing individual factors, like sex or race or category of disability. (If you want to check it out, Googling “disability statistics Cornell University” should get you there.) Here are some of the numbers that stand out to me:
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🔸About 80% of nondisabled people are employed. 36% of disabled people are employed.
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🔸65% of nondisabled people receive their health insurance through their work. 66% of disabled people depend on Medicaid or Medicare.
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🔸You are well over twice as likely to live below the poverty line if you have a disability.
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🔸The average income for a disabled person is $25,400 less than a nondisabled person.
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🔸And one more set of numbers → I was curious to know how many people like me (ambulatory disability/white/college educated/female) are working, compared to a nondisabled/white/college educated/male. ANSWER: 40.1% to 90.7% (I bet you can guess which identity goes with which number?)
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I still find myself wondering about all that remains unseen in these numbers, but I’ve been drawn to looking for the stories that are being told here -- in the land of numbers. I wonder what stories you see here? What stories are missing?

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Lately I’ve felt like the tube of toothpaste that I keep strangling for one last glob because I never remember to buy a replacement. These past weeks I’ve experienced unchecked, unfiltered ableism prancing happily through news stories, newly released Netflix movies, comments from friends — I’ve felt defeated, powerless to the blaring, pervasive, easy outpour of narratives that disabled people are problems, burdens, unfortunate versions of their better, nondisabled selves, tear-jerker images here to make spectators FEEL something. This is not what I see in the disability community. I see creativity and humour and grit and beauty and singularity and style and flair. But recently, I’ve felt smacked in the face by how little people outside this community understand or see what I see. .
The other night Micah and I went out for cheap chips and salsa. One of our favorite waiters made a joke about how I could get a second margarita, because I wouldn’t be the one driving home. I giggled with the straw still in my mouth, not pausing to unpack his comment. Later, he came back with a nervous, earnest energy. “I’m so sorry, I just realized that I totally made an assumption that you don’t drive. But can I ask -- do you? Drive?” Playing it back, I realized that he’d attached my wheelchair to an inaccurate story, and he’d come back to address it, to apologize for the assumption, to fill in the gaps. He couldn’t have known the planet of fatigue I’d been carrying. And his gesture was so small, but honestly, I could have cried and kissed his sweet forehead. Instead, I told him all about my old-man driving instructor with coffee breath. How I’d learned to use the one handed-controlled lever for both gas and breaks when I was seventeen. How glad I was that he came back to talk with us.
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Because of course we’re all subject to ableist assumptions. We’ve been breathing in the fumes as long as we’ve been here. The difference I felt in that moment was an attempt to reach out, to look into another person’s eyes and see, to listen to another person’s voice and hear, to re-imagine, even when it’s hard or awkward, even when we don’t have to. A flash of collaborative revision.

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"Without representation, it is easy to see how disabled people might assume they aren't worth representation..." Great article on Chelsea Warner on Forbes, linked here: https://buff.ly/2TVQpem | #365dayswithdisability ⁣
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#diversity #diversityandinclusion #diversityisbeautiful #culturaldiversity #diversitymatters #diversityinfilm⁣
#hr #hrt #humanresources #specialed #specialeducation #specialeducationteacher #specialedteacher #inclusionmatters #inclusionrevolution #disabilityinclusion #disabilitypride #disabilityawareness disabilitylife #disabilityadvocate #invisibledisability #disabilityblogger #specialneeds #specialneedsmom #specialneedsparents #specialneedsparenting #specialneedsfamily #specialneedssiblings #specialneedskids #specialneedsparent

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WOW!!!! This is gorgeous @worldwidedance 👏 #365dayswithdisability .
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. #littlepeople #mda #musculardystrophy #spinabifida #autism #autistic #downsyndrome #chronicpain #spoonie #disabled #chronicillness #disabilityawareness #cysticfibrosis #bipolardisorder #dyslexia #dysautonomia #spoonie #postexertionalmalaise #chronicfatiguesyndrome #myalgicencephalomyelitis #fibromyalgia #brainfog #ME #fatiguedAF #fatigue #CFS #chronicfatigue #meawareness .

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Relishing the shapes my body makes, with its muscly arms and spastic legs. The warmth of my shoulder paired with the cool, clammy skin by my ankles. The pearly thin texture of my scars on the tops of my feet and down my spine. The staggered slope from one shoulder to the next.
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An art teacher at our school gives an exercise where students have a minute to draw a little sketch of something -- a castle or a cat or a self portrait -- then they have to draw the exact same drawing in fifteen seconds, then ten, then five. He adds this time limit so kids can get out of their heads and recognize the extraordinary bit that might come out of shifting parameters. One of our English teachers has been talking this week with students about technology and how our relationship to music has changed since the advent of algorithms on Spotify or Amazon; there’s a certain loss in our relationship to albums and artists, now that we don’t ramble through record stores so much. When I have my students write a blackout poem, they give birth to something entirely original, only using the words on a single page.
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So often people read the limitation of disability as sad, less, loss. And while I feel the limitations of the environment around me, I don’t feel like my body is a hindrance, a barrier, a hurdle to overcome. When you look at limitation within a piece of art or music or poem, limitations aren’t sad -- they’re the parameters that lead to something new -- growth, creativity, innovation. I live in this singular body that thrives and surges and whispers within the unique set of parameters my body dicates. What will you create? How will you surprise and defy? I’m here for it✨

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What could it mean to be in Cripple Love? In my experience, one of the most powerful forces of being a Real Life Cripple is direct access to alternate perspectives on the most assumed ways of being in the world. We are trained to see beauty in one kind of female form, and my body says, “Let’s think again.” Disability representation is reduced to inspiration or tragedy, and my daily experience says, “Let’s blur these lines and make a mess.” Ability is framed as the looming, harsh opposite to disability, and I whip through life demonstrating the intricate dance of finesse and impairment -- I see it everywhere I look -- in you, in me, in my students and my neighbor. To me, “crippling” something doesn't mean hampering it -- to cripple something is to defy, expand, resist the norm, challenge the default, and build something better.
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Cripple Love, then, is a partnership between folks who want to start from scratch. Who are you? Who am I? What do you want to build with these scraps? A castle? A fort? Two forts? Would you rather just swim? Here, let me help you take off the weight of gender expectations -- that’s not doing us any good. Let’s ditch the assumed timeline -- when did anything standardized ever fit our beat? Do these rituals make any sense for us? No? What would it look like to make our own? A ritual to match you and match me -- you want to make that with me? A Cripple Love, all our own.

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This is an interesting article on the architectural aspects of the ADA - https://buff.ly/2BBuv9e #365dayswithdisability⁣
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#diversity #diversityandinclusion #diversityisbeautiful #culturaldiversity #diversitymatters #diversityinfilm⁣
#hr #hrt #humanresources #specialed #specialeducation #specialeducationteacher #specialedteacher #inclusionmatters #inclusionrevolution #disabilityinclusion #disabilitypride #disabilityawareness disabilitylife #disabilityadvocate #invisibledisability #disabilityblogger #specialneeds #specialneedsmom #specialneedsparents #specialneedsparenting #specialneedsfamily #specialneedssiblings #specialneedskids #specialneedsparent

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A few weeks ago, my body was in so much pain that I couldn’t get dressed, leave my house, or really get out of bed for five days. Even with every pillow in just the right place, even when I took the gentlest breaths, my legs wouldn’t stop spasming. I was furious. Exhausted. Panicked. And DONE.
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Right as the pain started to recede, I got an email from a woman who’d found this account. She explained — with honesty and grace — her recent health issues were quickly impeding her ability to do life as she’d known it. She’d seen something empowering in my posts, and she wanted to know how to get to the other side — from Point A to Point B. To get on the other side of the loss and grief. I had no answers and a hundred feelings.
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Here are some ideas her beautiful question prompted:
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THIS IS HARD. It just is. I emphasize the difficulty, because I grew up believing it wasn't okay to express the hard parts of life in this body. I received an avalanche of praise for smiling despite my disability and cut myself off from everything that wasn’t shiny — suffering, grief, resentment — in order to make others more comfortable, to look better, to inspire. Some of those smiles were genuine, but they were only part of the picture. I practiced this distorted, relentless positivity until I actually crumbled, physically and mentally, and had to rebuild from scratch. But as I learned to receive the heavy, hard feelings too, I realized something: acknowledging/honoring all of the feelings allowed me to feel everything more — more joy, more pleasure, more pride, more love. In other words, I don't think there are shortcuts to get from point A to point B. We get there, by trudging through all of it. Our instincts tell us to skip over it as quickly as possible. We don't want to wallow. What if we never get out of the grief? But in my experience, as I allowed myself to feel it all, I received it all. Joy, laughter, love, and tenderness exist alongside grief and frustration.
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My wish for you is that you can give yourself the permission, the space, the time to feel it all. I wish for you to find the people who hold space for all that you feel until your easy smile comes back to you💛

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Up Up and Away...Pilot Mary reporting for duty ✈️ . [Image shows a girl with long brown hair and wearing glasses in a white and blue glider getting ready to take off. The pilot is on the outside of the glider with his thumbs up. The glider has “Ulster Gliding Club” written on it] .
#accessiblegliding #gliding #glider #gliderpilot #accessiblesport #accessibleflight #disabilitysport #disabilitygliding #adrenalinesports #cerebralpalsy #cerebralpalsystrong #cpwarrior #disabilityadvocate #adaptivesports #cpstrong #cpstrong💚 #wheellifestories #cerebralpalsyawareness #cerebralpalsyadvocate #365dayswithdisability #inclusivesport #disabilityblogger #irishblogger #northernirishblogger #ulsterglidingclub #northcoastni #loughfoyle #northernireland #ireland

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HAHAHA!! #365dayswithdisability⁣
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#disability #downsyndrome #downsyndromeawareness #t21#theluckyfew #lifeisbetterwithyou #trisomy21 #downsyndromerocks #downsyndromelove #nothingdownaboutit #downrightperfect #disabilitypride #extrachromosome #specialed #specialeducation #specialeducationteacher #specialedteacher #disabilityblogger #specialneeds #specialneedsmom #specialneedsparents #specialneedsparenting #specialneedsfamily #specialneedssiblings #specialneedskids #specialneedsparent #diversityandinclusion #diversityisbeautiful #diversitymatters

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I wasn't sure quite how to say this, but developmental disabilities are nothing to be mourned. Nobody needs to feel sorry for anyone with a developmental disability, OR feel sorry for their families! Having a developmental disability is an interesting way to experience the world, and I know I am glad to have a glimpse at it all through my daughter's take on things, and through my friendships with adults with developmental disabilities. THIS IS A COOL THING.So how about we start reframing the conversation? #365dayswithdisability⁣
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#disability #downsyndrome #downsyndromeawareness #t21#theluckyfew #lifeisbetterwithyou #trisomy21 #downsyndromerocks #downsyndromelove #nothingdownaboutit #downrightperfect #disabilitypride #extrachromosome #specialed #specialeducation #specialeducationteacher #specialedteacher #disabilityblogger #specialneeds #specialneedsmom #specialneedsparents #specialneedsparenting #specialneedsfamily #specialneedssiblings #specialneedskids #specialneedsparent #diversityandinclusion #diversityisbeautiful #diversitymatters

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This is similar to what I want to do here in Hawaii! Only, of course, I want to include a bed and breakfast and training center that would all be run by people with disabilities! https://buff.ly/2Wm9rMM | #365dayswithdisability ⁣
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#disability #downsyndrome #downsyndromeawareness #t21#theluckyfew #lifeisbetterwithyou #trisomy21 #downsyndromerocks #downsyndromelove #nothingdownaboutit #downrightperfect #disabilitypride #extrachromosome #specialed #specialeducation #specialeducationteacher #specialedteacher #disabilityblogger #specialneeds #specialneedsmom #specialneedsparents #specialneedsparenting #specialneedsfamily #specialneedssiblings #specialneedskids #specialneedsparent #diversityandinclusion #diversityisbeautiful #diversitymatters

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I grew up with 5 older siblings. When we were little, our lives were mashed together, like puppies in a box. I climbed to the top bunk or scabbed my knees crawling down the sidewalk, and they lugged me up flights of stairs or threw me on their backs. All part of normal life routine. We didn’t discuss it.
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I see my brother David every few months now. He looks so much like my dad it plays tricks on my brain, and he’s about to have his seventh kid. On Sunday, at a big family gathering, he asked me about my writing. What is it about? What do I hope it will bring to the world? My brain froze as my mouth started babbling. Well, disability and lack of representation and the impact of inaccessibility and and and. Eventually I landed on this word shame. The shame that attaches so easily to a body that doesn’t fit. He was shocked. “Shame?? How? Why would you ever feel ashamed?” His question caught me off guard. It was profoundly telling. This person who grew up beside me -- one bunk bed over, one seat behind, just across the table -- didn’t know that I grew up believing my body was a glaring problem, a weight on the world, a failed prototype. How could he not know?
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There are countlesss reasons. My stories of disability -- the deepest, truest parts of my experiences -- are buried so deep. I grew up without language. I didn’t have the words, the framework, the community to help me understand my own experiences. I truly believed I was the only one. And even before language, there is the persistent, deep, dark, unrelenting belief that voicing discontent will only make it worse. We pretend everything is fine so no one will look, to avoid becoming more of a burden, a spectacle. Move on! Everything’s fine here! Normal as pie, or whatever.
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“When you grow up in a world that doesn’t see you or welcome you or include you or represent you, you believe the world isn’t for you,” I told David. “It’s for all the other people.” (The ones being seen, welcomed, included, represented.) I didn’t know it when I started babbling, but I got there. This is why I want to unbury the stories, to bring them into the light, to let them breathe in the open air. Because we are a part of all this.

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Ruffling feathers and blowing minds just by existing and not giving a shit. .
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That this year has been one of exhaustion is no secret. I am tired body, mind and spirit. Active and purposeful activism has been put aside to sit with other forgotten things like regular bathing, brushing my hair and being able to keep my eyes open. .
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But being out in the world works its own magic. To sit in my wheelchair then stand with my walking stick on a busy thoroughfare in the city shocks the senses. Moving through aids at my need. Dressing in my finest peacock. A walking stick resplendent with a floral bouquet. Taking photos. No hiding. No apologies. No shits given. The confusion on the faces in the restaurants and walking by. Small moments to shake outdated and infantalising ideas. .
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Being visible without hesitation. Living my life my way. I don’t speak or acknowledge (well, except for the “those shoes are amazing!” or the “where did you get that walking stick?” where I am happy to respond) just focus on my family and how much I love my outfit. .
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Activism is sometimes found in those quiet moments when we are unapologetically visible in a world that frequently fails to see us, or creates artificial boundaries to make us palatable. .
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And as I lie in bed today still trying to recover a week later I remind myself that sometimes existence and simply being are worthy and satisfying rebellion. Especially when it’s all I can muster.
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[Images: 1) Michelle stands on a dark walkway in a pool of light. Behind her, city lights can be seen. She is standing with a red walking stick, decorated with a colourful floral bouquet and gold stopper. She wears a teal velvet suit, green sparkly bow top and red shoes. Her head is turned to the right of frame as she looks over her shoulder. 2) Michelle sits in her wheelchair in the same pool of light. Behind her, a multitude of coloured city lights can be seen. She wears a teal velvet suit, green sparkly bowed shirt and fabulous red heels. Her hands are raised and she's attempting to do a bad Vogue for the passing foot traffic behind camera.]
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#Dysautonomia #Chronicillness #Disability #Fashion #FrockingUp #40Plusfashion

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Nujeen Mustafa: "A leading voice for justice in her country, Syria," Nujeen Mustafa , who has cerebral palsy, "never attended school and taught herself English by watching American soap operas. In January 2014, when she was 16, she began a 5,600-kilometer journey from Syria to Germany in a steel wheelchair. She has become a powerful voice for human rights."[Image description: photograph of a long haired, light-skinned young woman who sits at a table in a wheelchair, leaning intently toward the viewer.] #365dayswithdisability⁣
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#diversity #diversityandinclusion #diversityisbeautiful #culturaldiversity #diversitymatters #diversityinfilm⁣
#hr #hrt #humanresources #specialed #specialeducation #specialeducationteacher #specialedteacher #inclusionmatters #inclusionrevolution #disabilityinclusion #disabilitypride #disabilityawareness disabilitylife #disabilityadvocate #invisibledisability #disabilityblogger #specialneeds #specialneedsmom #specialneedsparents #specialneedsparenting #specialneedsfamily #specialneedssiblings #specialneedskids #specialneedsparent

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On Monday I snapped at a group of three fourteen-year old boys who wouldn’t stop whisper-chatting during our class discussion of Native Reservations. They were defensive/apologetic, and I marveled at the effect of my snap.
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Tuesday I worked a 12-hour day and rushed through dinner prep -- flipping the bean burger, squirting the mustard, frying the egg -- and somewhere in the mix, I lost my grip and pressed the skillet against my paralyzed leg, big translucent blisters spreading from above my knee to the top of my shin. I knew my leg was in pain -- I felt it jerk and tremble -- even though I didn’t quite feel the screams.
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Wednesday morning Micah helped me get dressed, tenderly wrapping the hot blisters in gauze, gently lifting my stretchy olive green pants over the bulky bandage. I played my students music created by Indigenous artists while they drew maps of themes they found in Sherman Alexie’s story -- depression, perseverance, loneliness, hope. I arrived home with a body exhausted from all of its mending. I ate spaghetti and was deep sleeping by 8.
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Today I wore a cheetah jumpsuit, ate Rice Krispie treats and brownies for lunch, and fantasized with my students about naps at school. I wondered if they felt like their own life stories had a theme. What big words do they see repeating through their days? What words do I see running through mine? Snapped. Marveled. Rushed. Lost. Tenderly. Home. Mending. Cheetah jumpsuit🐆

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I follow @parfaitofficial just for their ads! And I gotta say.... I need new underwear soon. I know I want to give my dollars: to the company that promotes body positivity and #disability inclusion and celebrates beauty in all of its diversity! Their tag for this photo was awesome:
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99 problems, but my skin ain't one! #perfectfigure #selflove . .#365dayswithdisability .
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#disabled #spoons #disabilityawareness #disabilitypride #spoonielife #disability #disabilityrights #disabilityadvocate #disabilityawareness #disabledlife #disabledfitness #crip #power #powerful #igers #instagoodmyphoto #instalike #instagood #instadaily #instaart #bestphotooftheday #bestsnaps #weekendvibes #weekly_feature #lifeisgood #TheWeekOnInstagram #thephotosociety