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4 Years – The Impetus Behind The Collection of Essays

In 2014 I had received yet another email from a mother who had read something on my blog that was the tipping factor in her decision to keep her child with Down syndrome. That is, her decision to not abort her child with Down syndrome.

There have been many of these types of emails.

I started “coming out” as a disabled woman in 2010.  By 2014, I had been writing openly and honestly about both my experience as a person with disability and as a parent of a child with a disability for 4 years. It sobered me to know that somehow between the words I wrote or the images that I presented therein, lives were chosen. Living, breathing, growing lives.

After I received that email in 2014, I pulled together a collection of some of the essays from my blog, essays that clearly seemed to speak to others. The essays are for women who are at a crossroads similar to where I once was, choosing whether or not to keep their disabled child.

The essays are also about life with a disability.

I want life with a disability – any disability – to be seen as something that is an experience in a way of thinking, talking, hearing, seeing, moving, feeling. It is far from a tragedy, far from broken-ness that needs fixing, it is as complete and whole as it should be.

After all, it’s not disability that ever needed to change so much as our attitude towards it, and access to the world around it.

4 Years: The Book

This book is a collection of essays, original artwork and photographs.

The collection is divided into 2 sections: Down syndrome and Disability. The Down syndrome section includes artwork from before Moxie was born, straight out of my diary.

It’s available through pdf , e-book or print:


This is the best option if you’ll be reading it on a PC or kindle. I guess you could also print it out at home?

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The e-book looks best viewed on anything Apple – a MacBook, iPad, iPhone – it’s formatted for Apple products.

The e-book version of 4 years is available on iTunes (linked here) for $4.99

It’s also available from Blurb for the same price (linked here).[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column][vc_btn title=”Buy the e-book” color=”primary” link=”||target:%20_blank|rel:nofollow”][/vc_column][/vc_row][vc_row equal_height=”yes” content_placement=”middle” kswr_row_top_decor_enabled=”false” kswr_row_bottom_decor_enabled=”false”][vc_column][vc_column_text]

Learning curves….

Because I formatted this book using special software that doesn’t translate well to any type of self-hosting platform (ack), it’s only available in print version for a whole huge chunk of change on Blurb. Granted, it’s gorgeous when printed, but it’s not cheap:[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column][vc_column_text]

[/vc_column_text][vc_btn title=”Buy the print book” color=”primary” link=”||target:%20_blank|rel:nofollow”][/vc_column][/vc_row][vc_row css=”.vc_custom_1533064540700{background-color: #22b4d8 !important;}” kswr_row_top_decor_enabled=”false” kswr_row_bottom_decor_enabled=”false”][vc_column width=”1/2″][vc_single_image image=”45389″ alignment=”center” style=”vc_box_shadow_border” onclick=”custom_link” img_link_target=”_blank” link=””][/vc_column][vc_column width=”1/2″][vc_column_text css=”.vc_custom_1533065396884{background-color: #ffffff !important;}”]

If you are already my Patron, don’t buy this!

I’ll be sending it to you as a thank-you for your support.

If you would like to become my Patron and support my creating content like this, sign up – I’ll send you this book for free as a reward.[/vc_column_text][vc_btn title=”Be My Patron” color=”warning” link=”||target:%20_blank|rel:nofollow”][/vc_column][/vc_row]

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  1. Oh, wow! In shock and so.excited! I better download it before my weekend away! Can’t wait!

  2. I downloaded your book and loved it. The essay that meant the most to me was the one about apologizing for your disability. I am a teenager with mild sensorineural hearing loss in my ear. I also have anxiety and deal with chronic (left) ear pain. I don’t apologize for my actual disability but sometimes find myself apologizing for the effects: having teachers reconfigure seating charts, wear my FM system(especially when its being a pain), having to have people repeat themselves or talk louder, and getting upset due to anxiety and/or pain. Your essay was the wakeup call I needed to realize I do not need to apologize for the effects of my disability. So, Thank you.

    1. Your comment made me cry.
      It means SO MUCH to me to hear you say that – makes me so glad that I am putting some of this not-so-fun-stuff out there. I wanted so much to connect with you and others like us who have apologized for our seat at the table.
      Thank you for commenting.


  3. It turned out beautiful. I love the artwork. I will cherish my copy.

    1. thank you so much – that really means a lot to me – because you mean a lot to me.

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