I received an email a couple of weeks ago from a mother who had read something on this blog that was the tipping factor in her decision to keep her child with Down syndrome. That is, her decision to not abort her child with Down syndrome.
This was not the first such email I have received – there have been many in the four years that I have been writing openly and honestly about both my experience as a person with disability and as a parent of a child with a disability.
It’s a sobering thing to know that somehow, between the words on this blog or the images presented therein, a life was chosen. A living, breathing, growing life. The life of a human being.
This is a large part of the intention behind this blog.
I want women who are at a crossroads similar to the one that I once was, to have clear information, access to stories and narratives that will speak to them.
I also want a life with a disability – any disability – to be seen as something that is an experience in a way of thinking, talking, hearing, seeing, moving, feeling. It is far from a tragedy, far from broken-ness that needs fixing, it is as complete and whole as it should be. After all, it’s not disability that ever needed to change so much as our attitude towards it, and access to the world around it.
4 Years: The Book
In this book, 4 Years, I have compiled essays from this blog that I feel best articulate my experience and philosophy surrounding disability. Artwork that I produced as well as photographs are included.
The collection is divided into 2 sections: Down syndrome and Disability. The Down syndrome section includes artwork from before Moxie was born, straight out of my diary.
It’s available on Blurb in 3 formats:
- e-book (formatted for the ipad and iBook) (free!)
- pdf and regular print form. (neither pdf or print versions are free on Blurb)*
This was a labour of love: from me to you, a token of thanks for being a part of this journey with me, for reading, for cheering – and for pushing and questioning me too. I am growing more into the person that I want to be, and I have you to partly thank for that.