Proud Flesh

Proud Flesh

I went through the windshield of a car when I was 4 years old. It tore off most of my left eyebrow, sliced open my entire forehead and ripped up the skin under my mouth. This post is about my facial scars resulting from that car accident. Proud Flesh, “exuberant granulation tissue” – the first…

A Story of Othering, Part Two (Down syndrome and Camp)
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A Story of Othering, Part Two (Down syndrome and Camp)

This is a continuation of a personal story about 13 year old Moxie (who has Down syndrome) and camp crush experience. The first part of the story is linked here: A Story of Othering, Part One (Down syndrome and Camp) After the spotlight had been placed on my 13-year-old daughter, Moxie over her apparent crush…

A Story of Othering, Part One (Down syndrome and Camp)

A Story of Othering, Part One (Down syndrome and Camp)

This is an essay about an experience that I had with my daughter’s camp last year. Last year my daughter attended a theatre arts camp. It was a day camp, and she was the only teen there with Down syndrome. She was surrounded by other children, tweens and teens, mostly without any type of apparent…

Best Alarm Clocks for Deaf or Hard of Hearing People
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Best Alarm Clocks for Deaf or Hard of Hearing People

This is a resource post on the best alarm clocks for deaf or hard of hearing people. 29,000 d/Deaf and Hard of Hearing community members were asked what their favorite ways to wake up were. This is what they said. Note: there are affiliate links in this post, which means that if you buy something…

3 Things I’ve Learned from Raising a Child with Down syndrome
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3 Things I’ve Learned from Raising a Child with Down syndrome

This is not an essay about what I’ve learned about Down syndrome or my child with Down syndrome. This is an essay about what I’m learning about myself as I raise my child who has Down syndrome. When my child (now a teen) with Down syndrome was born, I knew very little about Down syndrome….

Are We Assuming or Believing? The Case of “Assume That I Can”
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Are We Assuming or Believing? The Case of “Assume That I Can”

This is a parent-to-parent response and commentary on the short video “Assume That I Can So Maybe I wthat CoorDown produced for World Down syndrome Day. The 2024 CoorDown video for World Down syndrome Day explores the idea of self-fulfilling prophesies. ‘Assume That I Can So Maybe I Will” and with that, the ability to…

A Moment with Breath

A Moment with Breath

This is a personal post about moving, change, remembrance and living. I started writing it on December 12th, 2023 and finished a month later. I need to stop saying I don’t look back much, because it’s just not true. I think I look back with a fair amount of regularity. I’m a nostalgic type of…

Mama Be Strong: Challenge!

Mama Be Strong: Challenge!

This is a “challenge” post for Mama Be Strong A few books that I read this past year really knocked my socks off. One of these was Atomic Habits. Another was You Can Heal Your Life. Atomic Habits really gets into the fact that motivation doesn’t mean much; it’s habits that are where the. juice…

The Kindness Calendar and Kindness Bucket Lists (Free Printables)
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The Kindness Calendar and Kindness Bucket Lists (Free Printables)

This is about the Kindness Calendar, which can be used at any time of course, but it was made with Down Syndrome Awareness Month in mind. It has been updated to include a new (free) printable with graphics and a pdf list (which might for easier reading for some people), Taking this one step further…

FaceTime Has Captions! Here’s How to Enable Them
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FaceTime Has Captions! Here’s How to Enable Them

This is a post on FaceTime captions, and a brief tutorial on how to turn on them on. This is updated from March 2022. Captions are the text in a video that relay what is being said. I am deaf and I lipread, so they are very helpful in supplementing what I miss, either through…

A List of Great Books with Deaf Characters

A List of Great Books with Deaf Characters

These are some great books that have deaf characters or are about Deaf culture, American Sign Language (ASL) or deaf identity. These books are helpful in better understanding deaf culture, ways of life, challenges, struggles, triumphs… and some historical perspectives. Authenticity is Growing… As you can see from the list above, there are a growing…

Chrome Can Add Live Captions to ALL Videos! Here’s How

Chrome Can Add Live Captions to ALL Videos! Here’s How

A tutorial on how to turn on the live captions on chrome so that all content viewed using the chrome browser will be automatically captioned. Chrome browser now offers live automatic captions on ALL content viewed or heard through the browser: ALL video, ALL audio. This means that should you be viewing a video on…

46 Actually Deaf Influencers and Content Creators to Follow

46 Actually Deaf Influencers and Content Creators to Follow

This is a list of various deaf influencers, content creators and performers to follow on social media. Actually Deaf Influencers and Performers on Social Media This is the thing. ASL is popular with a lot of people, not just Deaf folks. There are many, many hearing people who teach ASL on social media, make content…

The Best Speech to Text Apps for Live Captions & Recording
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The Best Speech to Text Apps for Live Captions & Recording

This post is about the best speech to text apps and is updated from a 2020 post. Affiliate links may be present – doesn’t cost you more, helps keep this blog going and does not affect my rating of the product (- I use captions too; I’m not going to recommend junk for the sake…

The Labor of Grief

The Labor of Grief

I. It’s 6:30pm and I’ve been working since 4:34 this morning. My brain is numb. I’m satisfied that my house is clean (enough), my work is done (enough), the kids are happy (enough). The garden is wild, hasn’t been tended to (enough) and my heart… well. I know the way I’m living right now isn’t…

The Definitions of Deaf, deaf and Hard of Hearing

The Definitions of Deaf, deaf and Hard of Hearing

This is a basic definitions post, for reference. It covers basic definitions of “little d” or “small d” deaf, “big D” or “large D” Deaf and of Hard of Hearing. The Definition of “little d” deaf: “Little d” or “small d” deaf are those of us whose primary language is not signed. We are are…

Definitions of Disability, Disability Pride

Definitions of Disability, Disability Pride

This is a short post that includes an Instagram video. It covers definitions of disability, of the disability movement disability rights movement and definition of disability pride. This is offered as a free pdf download to help with access. The link is at the end of the post. These “definitions” are brief statements about the…

Moxie’s Going to Camp!

Moxie’s Going to Camp!

Rock on! You guys are sending Moxie to camp! I could not be more thankful. Here are the series of videos that I posted for her on Instagram, “Moxie’s Mahalos” in which everyone who contributed to sending her to camp is thanked. By Moxie. View this post on Instagram A post shared by Meriah is…

Best Books for Understanding Autism in Women & Girls

Best Books for Understanding Autism in Women & Girls

This is about reviewed books to help with understanding Autism in women and girls – in understanding how Autism expresses itself with women and girls, resources, tips and more. Our Understanding of Autism in Women Autism hasn’t changed but our understanding of it has. We now know that it doesn’t express itself in the ways…

“Light It Up Blue” is Bad. This is Why You Shouldn’t Buy in to the Blue or the Puzzle
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“Light It Up Blue” is Bad. This is Why You Shouldn’t Buy in to the Blue or the Puzzle

“Light It Up Blue” is all over the place since it’s April – Autism Awareness Month. Yay! That’s the month I always dread, because my Facebook feed is flooded with posts by my Autistic friends on how much they loathe Autism Speaks and the whole “Light It Up Blue” campaign thing, and then! All the…

Bridging the Gap: Neurodivergent Girls Connect!
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Bridging the Gap: Neurodivergent Girls Connect!

This is an embedded post from Instagram, featuring @jordannicholewall and @reberrabon_bon in a conversation about Autism and Down syndrome, and similarities between the two. Beautiful conversation embedded below: View this post on Instagram A post shared by Jordan Nichole Wall (华美梅) (@jordannicholewall) Autism and Down syndrome: Both Neurodivergent, Both Developmental Disabilities I don’t think most…

Alexa: The Disability Accommodation You’ve Been Waiting For

Alexa: The Disability Accommodation You’ve Been Waiting For

This is about using Alexa as a disability accommodation. It’s focused on using Alexa with children, but it could be interchanged with Siri or any comparable device assistant When Prime Day came last year, I stocked up on Alexa devices, so that every room has one. I did this for easy communication with my kids,…

Love Grows Courage
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Love Grows Courage

This was originally published on September 7, 2012. It’s a personal post on strength, love and courage. You can listen to me read this post by clicking the player below, or on my podcast on Spotify or iTunes. Maya Angelou once said that courage is the most important virtue, because without it, we wouldn’t be…

How to Use Air Pods as Hearing Aids
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How to Use Air Pods as Hearing Aids

This is about how to use Apple Air Pods as hearing aids using live listen. It includes step by step video instruction and image instruction for enabling live listen, and information on which devices work with live listen as well as which headphones. View this post on Instagram A post shared by Meriah is Unpacking…

Here’s the ASL Performances from the Super Bowl

Here’s the ASL Performances from the Super Bowl

This is a quick post with players embedded for the ALL the ASL performances of the 2023 Super Bowl. It happens every year: Super Bowl comes, a big performance, the Deaf community gets really pissed off because it’s so freaking hard to find the videos of the ASL performances, and the ASL interpreters or performances…

Choosing Moxie
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Choosing Moxie

This was originally published on March 6, 2013 It is an account of the time that I was pregnant with Moxie. Please be aware this post discusses violence, sexual abuse and abortion. You can listen to me read this post by clicking the player below, or on my podcast on Spotify or iTunes. I. The…

Scholarships for Students with Disabilities

Scholarships for Students with Disabilities

This is a resource post with direct links to scholarships for students with disabilities. All scholarships are for students with disabilities, but some are location-specific, some are disability-specific.  In and of itself, accessing higher education can be challenging. When you compound disability, it’s even harder. There are sources that want to make this a little…

How to Enable Live Captions in Google Chrome
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How to Enable Live Captions in Google Chrome

This is a resource post on Google Chrome live captions, what the chrome live captions are, what they look like, and how to enable them. I was stunned to discover that Google has just stepped up the accessibility game by introducing an awesome new feature in Chrome – Live Captions! This is pretty amazing, you…

Almost 50, Part 2

Almost 50, Part 2

This is a personal post that wraps up the first part, Almost 50 Listen to me read this by clicking the player below: Almost 50, Part 2: Details You know what bothers me about the post I just sent your way, “Almost 50”? It bothers me that I was talking about real things in a…

Our Kids with Down syndrome Are Not What We Expected!

Our Kids with Down syndrome Are Not What We Expected!

The Down syndrome community is tight. Oh, I know I’ve said this before. It’s tight and it can feel every bit as real as a bio family. A bunch of us were coming up with our babies at the same time. We were either pregnant with a baby with Down syndrome or we had newborns…

Almost 50

Almost 50

I wanted this to be a personal post like hauʻoli makahiki hou – a year sum up – but in the end, the time to write it was as elusive as mercury. And so. This is mostly about time. Click the player below to listen to me read this. Time speeds up when we get older….

Scholarships for the Deaf and Hard of Hearing: A Huge Guide
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Scholarships for the Deaf and Hard of Hearing: A Huge Guide

This is a resource post with direct links to scholarships for deaf and hard of hearing students. It is clearly and easily organized, and includes general disability scholarships that are also open for us who are deaf or hard of hearing. Accessing higher education can be challenging. We all know that in and of itself,…

Get to Know Moebius Syndrome: The Rare Condition Affecting 1 in 50,000
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Get to Know Moebius Syndrome: The Rare Condition Affecting 1 in 50,000

This is an awareness post, highlighting Moebius syndrome, a rare neurological condition. What is Moebius syndrome Moebius syndrome is a rare congenital (present at birth) neurological disorder that affects the facial muscles. It occurs in about 2 to 20 people per million births. 1 in 50,000 is the lower end of numbers. All ethnicities have…

Do You Have a Thyroid Problem? Here Are the Symptoms

Do You Have a Thyroid Problem? Here Are the Symptoms

Thyroid Awareness This is about Thyroid awareness, symptoms of thyroid problems, and what to do if you have a thyroid issue Thyroid imbalances have an uncanny way of slipping under the radar. It’s one of the biggest threats that go unnoticed, and it goes unnoticed by millions of people. It’s super-common, but also super-affecting. Thyroid…

Best Books Featuring Deaf and Hard of Hearing Children
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Best Books Featuring Deaf and Hard of Hearing Children

These are lists of children’s books for deaf and hard of hearing children, featuring deaf or hard of hearing children in the stories. Deaf or hard of hearing children are the main characters in the stories. Some of the books feature kids with cochlear implants, other with hearing aids. Amazon is linked for clarity –…

Apple’s Incredible Ad Had Me in Tears

Apple’s Incredible Ad Had Me in Tears

This is about Apple’s ad for accessibility, “The Greatest” You know, the world can be so damn depressing. I don’t need to tell you about that. It’s just one thing after another if you aren’t careful, stuff’ll sink you. That’s why it’s important to hold onto and shine a lot on what’s going right. And…

3 Reasons to Care About International Day of Persons with Disabilities

3 Reasons to Care About International Day of Persons with Disabilities

International Day of Persons with Disabilities was created by the United Nations in 1992 and seeks to “promote an understanding of disability issues and mobilize support for the dignity, rights, and well-being of persons with disabilities.” In a world that sometimes seems full of awareness days but short on genuine access and inclusion, it might…

The Disability Organizations Doing the Best Work These Days
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The Disability Organizations Doing the Best Work These Days

This is a list of the best disability organizations – that is, organizations doing great work with disability. It is updated from an original 2018 list. This is a handy list to have for Giving Tuesday, or if you want to connect with a great organization for an internship, do research on what leaders in…

If You Get Listening Fatigue, This is What to Do
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If You Get Listening Fatigue, This is What to Do

This is a post with tips for those of us who experience hearing – or listening fatigue I’m sure it’s happened to many of you – I know it’s happened with me. You need to understand something that someone is saying. You struggle to pull together all the cues: what you pick up through all…