Down Syndrome Groups on Facebook

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Down syndrome Groups on Facebook

There are a plethora of Down syndrome groups on Facebook. There are groups for IEP help, education, conferences, connections, blogs, siblings and more.

Unfortunately, many of the groups in the Down syndrome community have had to become “secret” because of internet trolls. That means that I might link to them here, but if you go searching for a secret group, you won’t find it. The groups that I will link to below are primarily closed groups, which means that you will need admin permission to join.

Here we go!

Facebook is a major source of connection for families with a connection to Down syndrome.

Communication Issues for Kids with Down Syndrome

IDEA and IEP Tips

Coalition of Progressive Mothers of Children with Special Needs

International Alliance of Writers for Down Syndrome

IDSC Connections

IDSC Siblings

IDSC Pre-K Elementary

IDSC Adoptive Family Support

DSDN Private FB Group

Down Syndrome Potty Training

IDSC Business/Employment Discussion Page

Parents of Children with Down Syndrome

Special Needs Community

Down syndrome Mommies

Trach Kids with Down syndrome

Down syndrome Autism Connection

Down Syndrome

Grandparents and Grandkids with Down syndrome

Homeschooling and Down syndrome

Educational Strategies for Children with Down Syndrome

Modifying Curriculum for Individuals with Down Syndrome

Special Kids Equipment: Exploring the Minefield

NDSC Annual Convention Group

Trisomy Families

Down Syndrome Prayers and Support

Our Adventures with Down Syndrome

Down Syndrome Single Mommies

Down Syndrome Awareness

Future of Down’s

A Little Something Extra!

Designer Genes: Down Syndrome Personalized

Down Syndrome News

Speech Therapy Ideas

CAPOD (California Parents of Down Syndrome)

KIDS – Keep Infants with Down Syndrome

Down Syndrome Usborne Book Drives and Fairs

The Real Truth About Down Syndrome

I Am Who I Am

This Ability Special Needs Family Support

DS Families

Down Syndrome Research Foundation

Down Syndrome Parents

Inclusion for Children with Down Syndrome

World Down Syndrome Day

World Down Syndrome Day: Random Acts of Kindness

Disability and Special Needs Awareness

Down syndrome Medical Educate and Share for Ds Parents

Facebook: Stop Allowing Groups that Mock Special Needs and Disability

Down Syndrome Self Advocates

Tips for Special Needs at Disney

Parents of Tweens/Teens/Adults with Down Syndrome

T21 Mum Australia Pregnancy

The Road We’ve Shared

Behavior Intervention for Children with Down Syndrome

Down syndrome Neuro Development and Supplements Conversations

T21 LGTB Families

Down syndrome & Leukemia



(which means that these groups exist, but you’ll need to search and have a connection to get in)

Hormone Deficiency in Down Syndrome

Down Syndrome Action Group

Trisomy 21 Research

T21 Brigade

T21 Online Group

Down Syndrome Research and Treatment Foundation-DSRTF

Parents of Teens and Up With Down Syndrome

DSDN and Adoption

Down syndrome groups on Facebook: a comprehensive list of groups on Facebook with a connection with Down syndrome


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Meriah Nichols is a career counselor, teacher and blogger. Single mom to 3 (one with Down syndrome, one gifted 2E), she is also a cat-loving Trekkie who likes her coffee hot and black.
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12 thoughts on “Down Syndrome Groups on Facebook”

  1. Really great list! I just requested to join the homeschooling one. Another great closed group I’m apart of is one for Breastfeeding. I found a lot of info online to be old and not comprehensive. Kind of thinking of joining the writing group. Maybe someday I’ll write something related to breastfeeding a baby/toddler with down syndrome.

    The group has really filled the gaps and given me encouragement. There are a couple of la leche league leaders and lots of parents with good information.

  2. Hi, I admin the World Down Syndrome Day group on Facebook, so thanks for the mention, we are growing daily. I’d also like to flag up another group I am involved with, Down’s Heart Group – we offer support and information relating to the heart conditions associated with Down Syndrome. As well as our website we have a Facebook page and a closed group



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