Down syndrome Groups on Facebook
There are a plethora of Down syndrome groups on Facebook. There are groups for IEP help, education, conferences, connections, blogs, siblings and more.
Unfortunately, many of the groups in the Down syndrome community have had to become “secret” because of internet trolls. That means that I might link to them here, but if you go searching for a secret group, you won’t find it. The groups that I will link to below are primarily closed groups, which means that you will need admin permission to join.
Here we go!
Facebook is a major source of connection for families with a connection to Down syndrome.
Communication Issues for Kids with Down Syndrome
Coalition of Progressive Mothers of Children with Special Needs
International Alliance of Writers for Down Syndrome
IDSC Business/Employment Discussion Page
Parents of Children with Down Syndrome
Down syndrome Autism Connection
Grandparents and Grandkids with Down syndrome
Homeschooling and Down syndrome
Educational Strategies for Children with Down Syndrome
Modifying Curriculum for Individuals with Down Syndrome
Special Kids Equipment: Exploring the Minefield
Down Syndrome Prayers and Support
Our Adventures with Down Syndrome
Designer Genes: Down Syndrome Personalized
CAPOD (California Parents of Down Syndrome)
KIDS – Keep Infants with Down Syndrome
Down Syndrome Usborne Book Drives and Fairs
The Real Truth About Down Syndrome
This Ability Special Needs Family Support
Down Syndrome Research Foundation
Inclusion for Children with Down Syndrome
World Down Syndrome Day: Random Acts of Kindness
Disability and Special Needs Awareness
Down syndrome Medical Educate and Share for Ds Parents
Facebook: Stop Allowing Groups that Mock Special Needs and Disability
Tips for Special Needs at Disney
Parents of Tweens/Teens/Adults with Down Syndrome
Behavior Intervention for Children with Down Syndrome
Down syndrome Neuro Development and Supplements Conversations
Secret:
(which means that these groups exist, but you’ll need to search and have a connection to get in)
Hormone Deficiency in Down Syndrome
Down Syndrome Action Group
Trisomy 21 Research
T21 Brigade
T21 Online Group
Down Syndrome Research and Treatment Foundation-DSRTF
Parents of Teens and Up With Down Syndrome
DSDN and Adoption
12 Comments
There is a Canadian group on FB https://www.facebook.com/groups/CDSPC/
thanks, Johanna!
https://www.facebook.com/groups/606931312836183/ My support group
Really great list! I just requested to join the homeschooling one. Another great closed group I’m apart of is one for Breastfeeding. I found a lot of info online to be old and not comprehensive. Kind of thinking of joining the writing group. Maybe someday I’ll write something related to breastfeeding a baby/toddler with down syndrome.
The group has really filled the gaps and given me encouragement. There are a couple of la leche league leaders and lots of parents with good information.
https://www.facebook.com/groups/breastfeedingchildrenwithdownsyndromegroup/
Awesome!! What’s the link to the breastfeeding group? xoxo
This is a FANTASTIC resource list! I shared it with several froups. Thanks for putting it together.
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Hi, I admin the World Down Syndrome Day group on Facebook, so thanks for the mention, we are growing daily. I’d also like to flag up another group I am involved with, Down’s Heart Group – we offer support and information relating to the heart conditions associated with Down Syndrome. As well as our website we have a Facebook page and a closed group
https://www.facebook.com/groups/DownsHeartGroup/
Thanks
Thanks for those links, Penny!
Hi Penny,
I was just wondering if your Down Syndrome Heart Group is also available in Spanish. If not, do you know any Facebook groups that are?
Sincerely,
Lori S., LCSW, MPH, PhD
Licensed Clinical Nephrology Social Worker