And he does like to invite himself over. He calls it Moxie's "house" and wants to hang out with her in it.
Moving back to our Moxie-News, she's got a physical therapist coming over this morning to assess her. Finally. She was rejected by Kaiser, remember? It's been an upward battle with the Regional Center since then to get her services. She has a developmental specialist ("teacher") coming in every week to work with this and that but it's definitely *not* the same as physical therapy.
The Regional Center was telling me I'd have to wait for services until after I appealed Kaiser's rejection which made no sense to me and things that don't make sense to me piss me off. It's such a run-around and in the meantime, I have a baby girl and she needs physical therapy. Play whatever bureaucratic games you want and shuffle all the paper your little heart desires but GET MY BABY THAT THERAPY. Already, dammit.
I "spoke to the supervisor" (reminds me of working in Jack in the Box) and got the assessment. If all goes well, Moxie will be hooked up.
It's funny in these things too. "All goes well" means Moxie doing badly on an assessment. It seems that even though she is meeting every*single "typical" milestone (– she's rolling over both ways, grabbing things, trying to sit up, etc), so long as she shows some delay during the assessment, the therapist will see her. I'm worried and for once, don't want her to show off. I'm having the therapist come at a time when I know Moxie is likely to be cranky, far less likely to want to roll over and pivot and do stuff. Fingers crossed.
Can I just rant for a second though? This is SUCH a dumb system. How utterly stupid is it to say, oh, your kids' got Down syndrome. Let's wait till she's REALLY delayed before we do anything about it? Hmm? Sound okay, mmmmm'kay?
Fingers are still crossed.
Meriah Nichols is a counselor. Solo mom to 3 (one with Down syndrome, one on the spectrum). Deaf, and neurodiverse herself, she’s a gardening nerd who loves cats, Star Trek, and takes her coffee hot and black.