This fantastic list of books about rare diseases and disorders that you might be interested in reading was pulled together by Rae Hower. Rae is joining me to coordinate the Disability Book & Movie Club. Get to know her through her bio at the end of this post, and please enjoy this awesome list.
Don’t forget: this US library citizen takes requests on books. If you want to read something below but don’t want to buy it, just head over to your local library and request it. They should be buying these books anyway!
Rare Diseases and Disorders:
February largely features rare diseases and disorders in terms of Disability Awareness focus:
This being so, we’ve collected books and movies about rare diseases and disorders to read and learn more.
Books on Rare Diseases that You Might Be Interested in Reading for Rare Disease Month:
Books on Rare Diseases
Rare diseases and disorders are something we’re always interested in learning more about. These books will help to shed light on some aspects of a few rare diseases. If you know of other books (- especially ones you have personally read and recommend!), please share.
Also, don’t forget to join the Disability Book and Movie Club on Facebook for more discussion.
Movies About Rare Diseases and Disorders
Rae is a mom of three whose eyes were opened to the beautiful diverse disability community (that she previously ignored!) when her daughter was diagnosed with Down syndrome. She is learning to be an ally by listening to people with disabilities and reading/watching their books, blogs and movies, and by going to as many trainings as she can. Rae is a part time international public health practitioner who likes yoga, loves the beach, and used to cook (she never cleaned). She occasionally dabbles in textile arts.
Meriah Nichols is a career counselor. Solo mom to 3 (one with Down syndrome, one gifted 2E). Deaf, with C-PTSD and TBI, she’s also a gardening nerd who loves cats, Star Trek, and takes her coffee hot and black.