In a Sea of Buddies: San Francisco Bay Area Down Syndrome Buddy Walk 2011

In the generously-topped heaping plate of Posts on Down syndrome I served you in October, I didn’t write of the Buddy Walk. The one “little” nugget that that everyone writes about, I somehow didn’t.

This is what happened: when we parked and walked in, I welled up, ready to bawl. Not for the reason that was mine the previous year, feeling sad in a sense that my child was a part of a cause, or from fear that my kid might/could/would/be *that* kid.

No, this year, it was because I realized that I checked my Guard with the car. That my reservations were down. I realized that somehow, somewhere along the way in the past year I have grown an armour and that no matter what, every time I enter a room, a place of typical development, I am on Guard, with those reservations. That it does not matter that I am so in love with my daughter, that I think she is bright and fun and gorgeous and smart and sparkly.

I am fully aware with every bit of my cannily observant deaf eyes how others see her.

And it makes me wary.

And the wariness makes me sad.

But not as sad it makes me when I feel myself unencumbered by the weight of Guard, finally grasping how heavy it really is.

That’s all I have to say about it.
***

Other than the tears, we had a whole lot of fun.

Micah (in red) having a BLAST

Moxie’s buddy from her program (who does not have Down syndrome) came, along with her Mama to support us and oh, that made me so happy! We met some new people and played with others we knew and had an all-round good time.

Moxie, in the crib of her new friend
lots and lots of people who love someone with Down syndrome
...and one more

We love you, Bunny.

 
***
What about you? Does this ever happen to you? I mean, do you ever become struck with the sudden knowledge that you’ve grown Guard?
Meriah
Meriah Nichols is teacher and artist who lives in a yurt off the grid. She is deaf, has 3 kids (one with Down syndrome) and a lot of chickens. She writes about travel, disability, and getting dishes done. She likes her tea Earl Grey and hot.
Meriah

@meriahnichols

#deaf mom, teacher & #disability activist, living in a yurt #offthegrid. 3 kids (1 with #downsyndrome), a camera and a lot of chickens. Never a dull moment
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