Rare Diseases and Disorders:
February largely features rare diseases and disorders in terms of Disability Awareness focus:
This being so, we’ve collected books and movies about rare diseases and disorders to read and learn more.
- Interesting statistics about how many people are affected by rare diseases can be found here: https://taylorstale.org/rare-disease/
Movies on Rare Diseases that You Might Be Interested in Watching:
The story of a boy who has craniodiaphyseal dysplasia, an extremely rare disorder. This is a fantastic movie that has it all: fierce mom, alternative living, fighting with the school for inclusion and more. A must-see. You can watch it on Netflix DVD (not streaming, unfortunately), and on Amazon. I couldn’t find it on YouTube either. Request it from your library if they don’t have it: this is a classic.
The Life We Live
The Tic Code
Brain on Fire
The Elephant Man
Love & Other Drugs
Afflicted – a Netflix series about people who have chronic illnesses – got slammed in HuffPost. That something is hated by us in the disability community isn’t necessarily a reason to not watch a movie (- Million Dollar Baby comes to mind); it could be fodder for some great discussions. So keep the door open and walk through it knowing that this series is hated by a lot of people with chronic illnesses.
The King's Speech
The true story of King George and his stuttering (is stuttering really a rare disease? I’m not sure, but it seems rare enough to include here…please correct if wrong!). You can watch it on Netflix DVD and streaming (linked below), and on Amazon. Your local library is likely to have it, too, as it’s recent (but not brand new!)
The Boy in the Plastic Bubble
Inspired by the Boy in the Plastic Bubble (see previous movie), and written by the same authors. It’s about a boy born without an immune system who builds a protective bubble for himself so he can chase his love across the country and win her. You can watch it on Netflix DVD, and on Amazon.
There We Go: The Movies About Rare Diseases and Disorders
That completes the list right now. Please drop a comment with a better way to watch a movie (free is great!) or movies about rare diseases and disorders that you recommend. We want to keep this list growing, relevant, informative and awesome.
Books About Rare Diseases
More Movie Reviews!More movies, reviewed! All related to disability
Rae is a mom of three whose eyes were opened to the beautiful diverse disability community when her daughter was diagnosed with Down syndrome. She is learning to be an ally by listening to people with disabilities and reading/watching their books, blogs and movies, and by going to as many trainings as she can. Rae is particularly interested in the intersection of disability and international public health. She likes yoga, loves the beach, and used to cook (she never cleaned). She occasionally dabbles in textile arts. Follow her on Twitter