Moxie

Moxie is my daughter and she has Down syndrome.

She’s 6, loves Shimmer & Shine, anything ballet-related, her friends, school, tutus and having a good time.

She’s fun. Get to know her in some of these posts:

Moxie in 1st Grade (2 Schools, 2 IEP’s…)

This is an anecdotal piece about Moxie, a 7 year old with Down syndrome in 1st grade, and our journey this past academic year in school changes and IEP's. 7 year old Moxie started school in Blue Lake, California this academic year. It was a huge shift for her, going from the Mattole School on the

Tea Collection: $15 Dress Sale with Moxie as Their Ambassador

Moxie, the Tea Collection and their amazing sale!

In Your Light: To My Daughter (with Down syndrome) on the Occasion of Her 7th Birthday

My daughter, when I woke up on the morning of your birthday, you were awake already. You had slipped out of your bed and headed straight for the art supplies. After I kissed your sweet cheeks good morning (and gave you a hug), you said that the drawing was for me - "see?! MOMMY" Ah!

The Case FOR Special Ed

I was like a snarling mama cat, clamouring for full inclusion until just recently. That is, for NOT having Moxie in a “special ed” classroom, in a classroom set aside in which all of the other children therein also have a cognitive disability. Moxie learns by imitation, I thought, what sense does it make to

When My Daughter with Down Syndrome Tried to Charge the Fishing Game

Moxie wanted the fishing game to work…

Moxie & The Tooth Fairy!

The tooth fairy came on by!

Moxie’s Big Wheel Ride

Big wheel ‘ing

Tell Me Why

SaveSave

Potty Training (with & without Down syndrome)

The Best School Ever said that it’s okay that Moxie isn’t potty trained, they want her (and more stuff like that that has me looking at my toes because I’m always worried I’ll start crying over their total awesomeness). But even with them saying so, I know it’s a good thing to get her on

Disciplining My Daughter with Down syndrome

Somehow, somewhere along the line, I stopped disciplining Moxie the same as I discipline Micah, or rather even, the same as I disciplined Micah when he was Moxie’s age. And I don’t know what happened exactly to change that. I suspect that her  inexhaustible appetite for adventure and mischief  had something to do with it – she

The Road Less Traveled: The Connection Between Travel & Disability

This blog now seems to have an audience that is made up of travelers, people with disabilities and parents of kids with special needs/disabilities. This makes sense to me, because, after all, living life in a unique way is something that all three of these groups have in common, right? In This Post You Will

"I Never Knew I Wanted a Child with Down syndrome Until I Got One"

What feels like a million years ago, I was on the Baby Center Down syndrome Board. I was immersing myself in the questions, the comments, the endless threads. The talk, the chatter, the crying, the heartache. The “brag”s. One signature struck me in particular, “I never knew I wanted a child with Down syndrome until

A Spirit, Unsilenced #justiceforethan

I feel the spirit of Ethan so strongly. I don’t like talking about it because it seems ripe for a trip to FruitLoop Land,  but you know what? I do. In This Post You Will Find:I feel his spirit.And I think of Ethan.Contributing to the Ethan Saylor Memorial Fund:Thank you! I feel his spirit. I

My Great Story & Ethan Saylor

I think my story in and of itself is a plump one. Take your pick, but most of the facets are individually pieces that people will write long about – from the early years on the rural sheep farm to the car accident. My parents becoming Baha’i’s, then moving to the Fiji Islands. Growing up

A Free iPad (for your child with a disability)

We all know apps can be great with kids… but what if your budget doesn’t allow for the purchase of an ipad itself? Here are some no cost options for getting your child (especially, your child with a disability) an ipad. *** In This Post You Will Find:Local Resources:Other Local Resources:Organizations:Good luck. Local Resources: Never

No Cost Options for Getting Your Child (with a Disability) an iPad

We all know apps can be great with kids… but what if your budget doesn’t allow for the purchase of an ipad itself? Here are some no cost options for getting your child (especially, your child with a disability) an ipad. *** In This Post You Will Find:Local Resources:Other Local Resources:Organizations:Good luck. Local Resources: Never

Some Thoughts on Monica and David

Monica and David: the story of a couple with Down syndrome who get married and begin their life together. It was originally aired a couple of years ago but Netflix just picked it up, which means I’m watching it for the first time. In This Post You Will Find:I should note that since the captioning

Choosing Moxie: A Birth Story About Disability and Bravery

I. The beginning of my pregnancy with Moxie feels jumbled, as I recollect it now, some 3 years later. It’s a blur of happenings, events moving swiftly upon each other like quick waves that peak in a tsunami. The blur may be due to the events themselves or may be to the way my mind works – I have

… the Post in Which I am a Defenseless Turtle at the IEP/Transition Meeting

So I’m sitting here with a sleeping Mac in my lap. I’m crying over him, big fat tears plopping all over his legs. I’m trying to figure out why exactly I’m so upset. The administrator’s parting comment over Micah reading Rumpelstiltskin (the book he brought along to read on his own during the meeting) rings

The Influence of Disability Within My World

Although I’ve had a disability since I was 4 years old (that we know of anyway), I was mainstreamed at all times. In my family, “disability” was something reserved for people who used wheelchairs. The answer to any disability-related issue I may have had growing up was invariably: try a little harder God only gives

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