Power Posts

Kindness calendar: image of two hands held up against the sun, with the fingers forming a heart

Power Posts

These were posts that I wrote with a million things weighing on me.

They were born of fear or frustration. Or anger. Posts that question the where, how and why of things we do.

Many of these echo things you have also felt, which is why we became friends. Or, if you haven’t read them yet, why we will become friends.

“Why Bother?” She Asked

Why bother with anything when it’s all going to die anyway?

Why I’m Glad the Doctor Told Me to Abort My Baby with Down Syndrome

In 2009, I went to the hospital for a 14-week scan of the fetus that I was carrying. The scan showed that she had diffuse fetal hydrops - there was fluid separating all of her skin and her body - and holes in her heart. She was given a zero percent chance of being born ...

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The Impact of Disability on Siblings : The Story of Dana and Meriah

Here is the story of growing up with my brother Dana, first published on March 12, 2012. Dana left this world on Labor Day, 2016. ________________________________________________________________ I went through the windshield of a car when I was four years old, back in the day when seatbelts were charming accessories. The glass shredded my face, the head-on collision …

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Let Down Syndrome Define You: A Letter to My Daughter

Moxie, let Down syndrome define you: move forward and be who you are because of who you are. See Down syndrome as a fundamental part of your identity, and claim it as the powerful piece that is a part of your human experience.

Tell Me Why

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Why Frida Kahlo Remains Relevant

“Oh my God!”, Mikey exclaimed as he read about Frida Kahlo for the first time, “she’s like someone you would be crazy about; a painter AND disabled!” Later he added that if she were alive, I’d probably be stalking her. I started my “Frida Period” when I lived in Tucson, Arizona about 20 years ago. I …

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Disability: Connections, Comforts & Judy Heumann

In This Post You Will Find:Judy HeumannJudy Heumann is an amazing woman, a remarkable woman, a mighty woman.People who get it: these are for me the comforts and connections of disability. Judy Heumann …is an attractive woman, perhaps a smidgen above middle-aged. An aura of authority and intelligence is around her, her voice is crisp, clear, …

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I Never Knew I Wanted a Child with Down syndrome Until I Had One

What feels like a million years ago, I was on the Baby Center Down syndrome Board. I was immersing myself in the questions, the comments, the endless threads. The talk, the chatter, the crying, the heartache. The “brag”s. One signature struck me in particular, “I never knew I wanted a child with Down syndrome until …

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Choosing Moxie: A Birth Story About Disability and Bravery

  I. The beginning of my pregnancy with Moxie feels jumbled, as I recollect it now, some 3 years later. It’s a blur of happenings, events moving swiftly upon each other like quick waves that peak in a tsunami. The blur may be due to the events themselves or may be to the way my mind works – I ...

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The Influence of Disability Within My World

Although I’ve had a disability since I was 4 years old (that we know of anyway), I was mainstreamed at all times. In my family, “disability” was something reserved for people who used wheelchairs. The answer to any disability-related issue I may have had growing up was invariably: try a little harder God only gives …

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