These were posts that I wrote with a million things weighing on me.

They were born of fear or frustration. Or anger. Posts that question the where, how and why of things we do.

Many of these echo things you have also felt, which is why we became friends. Or, if you haven’t read them yet, why we will become friends.


girl with Down syndrome smiles, she has light brown hair, big red glasses and is tilting her head. she holds a brochure for pals camp. text reads "sponsor moxie to get to camp"

Sponsor Moxie to go to Camp!

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Reading Time: 2 minutes
Moxie, she of the fierce courage, love of pink and all things Barbie, bright sparks and glittering smiles, she of towering neon flip flops (who knew they made them that high?!) and commitment to Alexa. Moxie’s all this and then some. She’s also one of the very few teens with Down syndrome on the Big…

The Influence of Disability Within My World

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Reading Time: 5 minutes
Although I’ve had a disability since I was 4 years old (that we know of anyway), I was mainstreamed at all times. In my family, “disability” was something reserved for people who used wheelchairs. The answer to any disability-related issue I may have had growing up was invariably: try a little harder God only gives…

I Never Knew I Wanted a Child with Down syndrome Until I Had One

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Reading Time: 4 minutes
What feels like a million years ago, I was on the Baby Center Down syndrome Board. I was immersing myself in the questions, the comments, the endless threads. The talk, the chatter, the crying, the heartache. The “brag”s. One signature struck me in particular, “I never knew I wanted a child with Down syndrome until…
choosing moxie: a birth story of bravery, disability and down syndrome

Choosing Moxie

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Reading Time: 7 minutes
This was originally published on March 6, 2013 It is an account of the time that I was pregnant with Moxie. Please be aware this post discusses violence, sexual abuse and abortion. You can listen to me read this post by clicking the player below, or on my podcast on Spotify or iTunes. I. The…