These were posts that I wrote with a million things weighing on me.
They were born of fear or frustration. Or anger. Posts that question the where, how and why of things we do.
Many of these echo things you have also felt, which is why we became friends. Or, if you haven’t read them yet, why we will become friends.
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Choosing Moxie
This was originally published on March 6, 2013 It is an account of the time that I was pregnant with…
“Why Bother?” She Asked
“Our lives begin to end the day we are silent about things that matter,” said Martin Luther King, Jr. This is a personal essay on how this can apply in life
The Impact of Disability on Siblings : The Story of Dana and Meriah
A personal story about the impact of disability on siblings
A Moment with Breath
This is a personal post about moving, change, remembrance and living. I started writing it on December 12th, 2023 and…
Tell Me Why
About fear, accountability and love
Learning to Run
Learning to parent a child with a disability is a lot like learning to run – you learn to breathe, pace yourself, push on. And it’s not a race, it’s a relay
About That Time I Met Judy Heumann
On my own journey in growing disability pride and overcoming ableism
Why Frida Kahlo Remains Relevant
About disability pride, overexposure, and the brilliance of Frida Kahlo, as seen in a visit to her home in Mexico City
Proud Flesh
I went through the windshield of a car when I was 4 years old. It tore off most of my…
Let Down Syndrome Define You: A Letter to My Daughter
A Letter to My Daughter in which I hope that she will allow Down syndrome to define her, and be proud of all that she is
The Influence of Disability Within My World
Although I’ve had a disability since I was 4 years old (that we know of anyway), I was mainstreamed at…
Why I’m Glad the Doctor Told Me to Abort My Baby with Down Syndrome
Coming to terms with internalized ableism, as a parent with a disability, having a child with a disability
Nothing About Us Without Us: Disability and Global Expansion
This is a post about disability, the disability community (- both for people with disabilities and non-disabled parents of people…
I Never Knew I Wanted a Child with Down syndrome Until I Had One
What feels like a million years ago, I was on the Baby Center Down syndrome Board. I was immersing myself…