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Power Posts

Kindness calendar: image of two hands held up against the sun, with the fingers forming a heart

Power Posts

These were posts that I wrote with a million things weighing on me.

They were born of fear or frustration. Or anger. Posts that question the where, how and why of things we do.

Many of these echo things you have also felt, which is why we became friends. Or, if you haven’t read them yet, why we will become friends.

Learning to Run

Learning to parent a child with a disability is a lot like learning to run – you learn to breathe, pace yourself, push on. And it’s not a race, it’s a relay

“Why Bother?” She Asked

“Our lives begin to end the day we are silent about things that matter,” said Martin Luther King, Jr. This is a personal essay on how this can apply in life

Why I’m Glad the Doctor Told Me to Abort My Baby with Down Syndrome

Coming to terms with internalized ableism, as a parent with a disability, having a child with a disability

The Impact of Disability on Siblings : The Story of Dana and Meriah

A personal story about the impact of disability on siblings

Let Down Syndrome Define You: A Letter to My Daughter

A Letter to My Daughter in which I hope that she will allow Down syndrome to define her, and be proud of all that she is

Tell Me Why

About fear, accountability and love

Why Frida Kahlo Remains Relevant

About disability pride, overexposure, and the brilliance of Frida Kahlo, as seen in a visit to her home in Mexico City

Disability: Connections, Comforts & Judy Heumann

On my own journey in growing disability pride and overcoming ableism

I Never Knew I Wanted a Child with Down syndrome Until I Had One

What feels like a million years ago, I was on the Baby Center Down syndrome Board. I was immersing myself in the questions, the comments, the endless threads. The talk, the chatter, the crying, the heartache. The “brag”s. One signature struck me in particular, “I never knew I wanted a child with Down syndrome until …

Choosing Moxie

  I. The beginning of my pregnancy with Moxie feels jumbled, as I recollect it now, some 3 years later. It’s a blur of happenings, events moving swiftly upon each other like quick waves that peak in a tsunami. The blur may be due to the events themselves or may be to the way my mind works – I [...]

The Influence of Disability Within My World

Although I’ve had a disability since I was 4 years old (that we know of anyway), I was mainstreamed at all times. In my family, “disability” was something reserved for people who used wheelchairs. The answer to any disability-related issue I may have had growing up was invariably: try a little harder God only gives …

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