Many years ago, I took care of an old man with Alzheimer’s.
For over six months, I fed him, gave him his showers, dressed him, kept him company, wiped his butt, took him for walks.
Fended his ‘crazy’ spurts – like when he tried to hit me all the way out of the house, then locked me out and was laughing maniacally through the window (oh yes. Ha. Ha. Ha. ).
the old man
I took care of him because in the initial interview, I took to his wife – I really liked her. With dark circles under her eyes, she was completely overwhelmed, struggling to care for him 24/7. But man…. the love she showed her husband! The tender way she looked at him! He had no idea who she was but still. She didn’t skip a beat. I wanted to help her. So I joined ship.
That period taught me a lot, you know. I was in such a raw state in my own life and self that I could not bear to be touched. But this old man could sometimes only be soothed by my holding his hand. I’d have to hold his hand and get to this place of stillness inside myself and let that energy come across…and only then would he quiet whatever agitation might have stirred up. But somehow in that all, he taught me how to hold hands. He taught me how to open up to other people again from a trusting heart space.
I’d watch him for hours as he gazed outside. He saw things that I didn’t. I wondered what they were.
the old man, looking out the window
I’d wonder if his glasses were magical, that through them he could view other worlds. Wonder at the workings of his mind. The path of… emotion that he walked upon.
You could say he was suffering, but while I’ll never know for certain, I don’t think it would be true. He looked just fine to me. His mind was almost gone to another place, that is true, but for the most part, he seemed happy and healthy.
The people that reallycould have been suffering in this were his family. His many children. His bright wife. But to suffer or not was their choice and they chose to not. They consciously chose to take his Alzheimer’s in stride and learn and grow as a familial unit. Bond ever-tighter. To request help when they needed it (enter me), but to form a net of pure love and catch this man who meant so much to them.
Alzheimer’s was a tragedy in that it took this man, while alive, from his family. It was a gift in that it allowed them an opportunity to grow – in spirit, as a family – that they may not have had otherwise. Who knows? But they saw it that way, they took it that way and let me tell you: it had some results. They were lovely people.
My daughter has an extra chromosome. A lot of people like to say that she’s afflicted, that she’s suffering from it. I don’t know if she is. She doesn’t seem like she is.
But what do I know? Maybe this is the face of “suffering” and “affliction“?
I like to think that she’s a maverick spirit that wanted to experience the world from a different perspective. I like to think that she’s pushing me to understand unconditional love. This little girl will never fit into a box; any box. The very nature of Down syndrome means that you don’t know what is going to happen. I need to love her as she is. In this very moment. With the future as it unfolds, however that may be.
I think this is worth learning. And so I thank my lucky stars that this person is in my life.
my little Maverick. In front of the big painting of the Old Man, looking out into his garden through his magic glass and seeing his young self out there
Meriah Nichols is a career counselor. Solo mom to 3 (one with Down syndrome, one gifted 2E). Deaf, with C-PTSD and TBI, she’s also a gardening nerd who loves cats, Star Trek, and takes her coffee hot and black.
The Difference Between "Special Needs" and "Disability" - Meriah Nichols
Friday 15th of June 2018
[…] “Disability” does not need to be a dirty word. It does not need to be something to be embarrassed or ashamed of. Rather, it holds the potential to a power to see and experience the world in a completely different way. […]
Sunday 21st of October 2012
I love the whole room artwork! Amazingly creative with such stories behind them. Everytime
See you daughters little face I want to squish her cheeks! She is so cute! Bron
Sunday 21st of October 2012
Lovely post. Life really is what we make it, isn't it? We can choose to suffer or embrace. It's all in our attitude. Your little one is awesome! Did you paint those paintings? They're awesome too!
Saturday 20th of October 2012
I have read this 3 times. It is that powerful to me!