Brown, S. E. (2003). Movie stars and sensuous scars: Essays on the journey from disability shame to disability pride. New York: iUniverse.
A series of essays follows my journey from beginning to identify as a person with a disability; to becoming a disability activist; to a focus on disability culture (including the definition of disability culture I wrote in 1996); and encounters with people and places around the world. While aspects of my life, like every life, are unique, there are also similarities with many other developing disability advocates of the late 20th century.
Burch, S. & Joyner, H. (2007). Unspeakable: The story of Junius Wilson. Chapel Hill: University of North Carolina.
This is not an easy book to read, because the story of Junius Wilson is horrific—a tale of discrimination, neglect, abuse, racism, and ableism. Wilson was a young, deaf, black man who found himself, inexplicably, in a mental institution. This is well-written academic book, and for those who can stomach it, a tale of disability encompassing most of the 20th century that, awful as it was, was not unique.
Clare, E. (2015, first published 1999). Exile and pride: Disability, queerness and liberation. Updated edition. Durham, NC: Duke University Press.
Clare has just published a new book, but I’ve not read it yet, so am unable to include it here. However, this book, in memoir style, is a story of transformation, awareness, and difference set in a small, logging town in the Pacific Northwest. It is written poetically, from an author who’s also a poet.
Johnson, M., with K. E Vincent. (2015). I love today: A story of transformation. Bloomington, IN: WestBow Press.
I’ve known Mark Johnson for 30 years, and admire him both as a key member of ADAPT and as a national disability rights leader who excels at facilitating both conversations and action. In reading this memoir, I was amazed at Mark’s journey from a young nondisabled man to learning first how to be quadriplegic, then how to thrive as a person with a disability.
Mark’s southern charm is clear throughout the book, but so is his passion and commitment to a world that needed (and needs) to change. Some readers may recall that in my poem, “Tell Your Story” there’s a section about getting a wheelchair ramp in a movie theater. That story came from Mark and it’s one of many stories detailed in this book.
Matson, F. (2004). Blind justice: Jacobus tenBroek and the vision of equality. Washington, DC: Friends of Libraries for the Blind and Physically Handicapped Individuals of North America and National Library Service for the Blind and Physically Handicapped.
This book is here because it’s a biography of one of the earliest disability rights leaders of the mid-20th century, who is largely forgotten today by many, if not most of us. tenBroek became blind when he was a boy, as a man he became a lawyer and law professor who helped create the advocacy oriented National Federation of the blind and influenced the Brown v. Board 1954 decision outlawing school segregation, among other achievements.. He was well aware of the need for disability rights and his 1966 California Law Review article, “The Right to Live in the World: The Disabled in the Law of Torts,”, which preceded by only a few years his death at a fairly young age, can easily be seen as a precursor of the Americans with Disabilities Act.
O’Toole, C. J. (2015). Fading scars: My queer disability history. Autonomous Press.
O’Toole’s book is memoir and more. An activist, academic, and artist, she has spanned much of the development of the disability rights movement in the Berkeley, CA area from the mid-1970s through today. Corbett has both been a participant in, and an instigator of, many aspects of the disability rights movement, including, but not limited to, women’s and queer issues, and she has brought a keen, and critical eye, to all these events. At the same time, she is clear about her place in the world as a mother, an athlete, and a scholar. Written with readers who digest information in multiple ways in mind, this is an excellent book about the Berkeley disability rights movement, and beyond to the overall disability rights movement as well.
Shilts, R. (1987). And the band played on: Politics, people, and the AIDS epidemic. New York: St. Martin’s.
I debated about including this book, because it’s a few decades old and because AIDS and how it is (and those who have AIDS are) treated has changed so much since Shilts wrote this book. A gay journalist, who died from AIDS, Shilts writes about the beginnings of the epidemic like a detective story and how what was often thought of as a “gay” disease was ignored and discounted. This is an aspect of disability rights often repressed but remains a story that deserves to continue to be heard.
Moore, L. F., Jr. (2015). Black Kripple delivers poetry & lyrics. Madera, CA: Poetic Matrix Press.
Leroy, one of the founders of the Krip Hop, who I’m happy to call a friend explores music, disability rights, and other topics. While this book is a compilation of some of Leroy’s poetry it’s much more than that as well. It’s a trip down memory lane, into the blues, black and blind history, and contemporary black disability rights. Leroy provides a quiz at the end of the book and from both it and the book, I learned a lot.
Burk, R. & Gadotti, C. (2016). Painting in the dark: Esref Armagan, blind artist. Boston, MA: Tumblehome Learning Inc. [For children]
One of my students, several semesters ago, introduced me to Armagan, a painter who was born blind in Turkey. This biography recounts how Armagan learned to paint, and how he and his paintings became internationally known. In addition, as I read this book for children I learned Armagan is also an inventor, who has created new forms of paint that facilitate his work.
Brown, S. E. (2015). Ed Roberts: Wheelchair genius. Institute on Disability Culture. [For Middle Grade]
I’m putting another one of my books in here and including two books geared for kids about Ed Roberts, a pioneering disability rights leader who is often considered the (but is more accurately one of the) founders of the independent living movement in the U.S. and who became an internationally known leader. This book is targeted to Middle grade readers, 8 to 12 year olds. Carson and Connally’s book is targeted for younger readers. While my book sat in CD only format for many years, Carson and Connally published their book. After they did so, I had a number of conversations with Diana Pastora Carson, who encouraged me to get my book out as well and I thank her for that.
Carson, D. P. and Connally, P. W. (2013). Ed Roberts: Father of Disability Rights. Indianapolis, IN: Dog Ear Publishing [For early readers]
This book is geared to younger readers than my book on Ed Roberts. It is distinguished in part by the art of the late Patrick Wm. Connally who knew Ed well. I’ve had one of Patrick’s paintings in my offices for over 20 years, so I’m definitely partial to the art here–as well as the narrative.