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Down syndrome

How to Stop Your Child From Eloping: A Guide for Parents of Children with Autism and Down Syndrome

This is about ways to keep your bolting child safe. "Bolting", "eloping" or "child who runs away with abandon" - this post is about ways to keep the child who is a runner, safe. Your "Runner" - Keeping the Eloping Child Safe Bolting is very common with kids with Down syndrome and Autism. It's also [...]
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Reasons to Celebrate: New Video for World Down Syndrome Day #LeaveNoOneBehind

CoorDown Onlus has released ‚ÄúReasons to celebrate" video with the world today! Reasons to Celebrate This video had me in tears because it nails exactly how I feel right now. I want to celebrate the fact that my daughter and her tribe are these really cool people who have gifts, skills, talents and awesomeness to offer [...]
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9 Great Children’s Books About Down Syndrome

This is a post about great children's books about Down syndrome. Children's Books About Down Syndrome Stories are a wonderful way to explain Down syndrome to a child, Good children's books find ways to convey the complexity - and simplicity - of Down syndrome, and they bring home the humanity of us all. I've personally [...]
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Why I’m Glad the Doctor Told Me to Abort My Baby with Down Syndrome

In 2009, I went to the hospital for a 14-week scan of the fetus that I was carrying. The scan showed that she had diffuse fetal hydrops - there was fluid separating all of her skin and her body - and holes in her heart. She was given a zero percent chance of being born [...]
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That Time When I Underestimated My Daughter with Down Syndrome…Again

I am not a newbie to the world of disability. I have disabilities myself. I have tons of friends with disabilities. I have worked  in the disability arena. In fact, I was working at UC Berkeley - the home of the disability rights movement - when I had the amniocentesis that told me that my [...]
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People with Down Syndrome Can Be Assholes Too

I noticed a few things floating around Facebook recently about how a lot of people think that Down syndrome is such a tragedy, but it could be worse... they could be an asshole Some of the memes are a definite jab back at the person who was making some totally thoughtless comment like, "what could [...]
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Vlogger with Down Syndrome is Busy Changing Perceptions

A Vlogger with Down Syndrome! Maria Jose Paiz Ariaz, a Panamanian vlogger with Down syndrome is shaking things up! Maria vlogs (- captures short videos as a blog) for the news site, La Prensa, covering everything from her views on adults with Down syndrome to Flor Mizrachi (who is Flor Mizrachi??). Here's a teaser, produced [...]
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8 Things To Do For Down Syndrome Acceptance!

This post is about things you can do to help raise awareness and acceptance for Down syndrome. This post targets Down Syndrome Awareness Month, Developmental Disability Awareness Month and World Down Syndrome Day. The ideas suggested in this post include both easier and harder ideas on how to focus your attention in the direction of [...]
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The Best Down Syndrome T-Shirts

Down syndrome t-shirts are wearable advocacy, and I've got a smattering of the best Down syndrome t-shirts for you! Donning garments with bold statements that testify to our beliefs (and allow others to question theirs) is an easy way to help promote acceptance. 100% of all profit go to support starting the Big Island Parent [...]
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Down Syndrome Breastfeeding Resources, Stories & Encouragement

This post is about Down syndrome and breastfeeding. It is written from my perspective as a mother. I breastfed my daughter with Down syndrome for 2 years, and breastfed my two typically developing sons. While I am pro-breastfeeding, breastfeeding was not an easy experience for me, nor did it come easily. The purpose of this [...]
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How to Tell if Your Child With Down Syndrome Needs Therapy

This post is about how to tell if your child with Down syndrome needs therapy. It is written from my perspective as a mother of a child with Down syndrome. That I am deaf and come from a disability-advocate standpoint, I am sure also affect the perspective from which I write. How to Tell if [...]
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The Very Best Down Syndrome Book Resources

This post is about best Down syndrome book resources - from memoirs to resource books. It's intended for parents and professionals working with people with Down syndrome.  The ones that I most highly recommend I have put an * before. Remember: your local library should offer most of these books, and if they don't, you [...]
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