[vc_row][vc_column][vc_column_text]Many years ago, I took care of an old man with Alzheimer’s. For over six months, I fed him, gave him his showers, dressed him, kept him company, wiped his butt, took him for walks. Fended his ‘crazy’ spurts – like when he tried to hit me all the way out of the house, then…
I'm going to come clean here: When I first saw "Moxie Dolls", I shuddered. I think it was the use of "z" in "girlz", I think it was the bright packaging. I'm not sure. I think it was the "z". But whatever it was, it was a classic case of prejudice – I hadn't…
Month with Moxie: Celebration Giveaway Moxie was born in May 2010 with a prenatal diagnosis of Down syndrome. She had already miraculously healed from her diffuse fetal hydrops and the holes in her heart. She was named "Moxie" as she had shown that she was full of it: courage. Verve. Vigor. Moxie has challenged us…
Elections are coming up here in the United States and it seems to be an especially heated one. There is much at stake: health care, veteran and disability services… and more. All sides are riled up, memes are flying and the internets are a'buzz. I asked my friend Melissa, who blogs at Garden of My…
October Down syndrome Weekend Blog Hop Welcome to the October Down syndrome Weekend Blog Hop, in which we all try to raise awareness regarding Down syndrome, connect the Down syndrome blogging community and to inspire our blogging selves with the our collective awesomeness! Those of you that are participating in the 31-for-21 Blogging Marathon,…
Month with Moxie: Celebration Giveaway Moxie was born in May 2010 with a prenatal diagnosis of Down syndrome. She had already miraculously healed from her diffuse fetal hydrops and the holes in her heart. She was named "Moxie" as she had shown that she was full of it: courage. Verve. Vigor. Moxie has challenged us…
This is one of those posts that I like so much that I'll probably still be whipping it out when all of these kids are 30, married and working. And they'll be all embarrassed, 'grrrrr, could you STOP re-posting that post already?' I'll probably stop then. But not before then. Just cuz I like it….
Back when I was pregnant with Moxie but without any moxie of my own, I was slip-slithery-sliding all over the place in treacly grounds of depression. I was struggling for a type of..what is the word?… Relief. That's it. Relief. I was so consumed with worry about who Moxie would be, about her future. Grappling…
October Down syndrome Weekend Blog Hop Welcome to the October Down syndrome Weekend Blog Hop, in which we all try to raise awareness regarding Down syndrome, connect the Down syndrome blogging community and to inspire our blogging selves with the our collective awesomeness! Those of you that are participating in the 31-for-21 Blogging Marathon,…
October Down syndrome Weekend Blog Hop Welcome to the October Down syndrome Weekend Blog Hop, in which we all try to raise awareness regarding Down syndrome, connect the Down syndrome blogging community and to inspire our blogging selves with the our collective awesomeness! Those of you that are participating in the 31-for-21 Blogging Marathon,…
Having a child with Down syndrome is sort of like being a member of a really small religion… like say, the Baha'i Faith (which I grew up with). It's all so small, so isolated, so misunderstood, so much explaining overall to do that somehow when you connect with another like yourself, you connect in a…
I am delighted to be guest posting over Mamapedia today. It's a post called, What to Say When You Hear My Daughter Has Down syndrome. It's an early post that I wrote, shooting straight from my heart and I hope you will go over there and read it (the original post is here: What…
I am delighted to be guest posting over at To the Max today, on the Parents website. It's a post called, What People With Down Syndrome Bring To The World: EVERYTHING and I hope you will go over there and read it. For those of you that are visiting here from reading my post there,…
October is National Down syndrome Awareness Month. It's the month in which we – members of the Down syndrome community – reflect on what a tiny little extra chromosome has brought to our lives by way of our children, our friends, our community. It's a special time in which we strive to share parts…
A new report by Disability Rights International on abuse within institutions for the disabled in Mexico was horrifying. It's unbelievable that this kind of monstrosity is still occurring today. Right now. So too, are reports regarding the situation of children with Down syndrome/disabilities in Russia, like this one from NPR and these from Human…