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A quick note – we’ll be watching Unrest (available on Netflix streaming) this week, with a Twitter Chat on 10/27

See The Calendar for complete details for all the books and movies planned, and make sure to join the Facebook group!

Twitter Chat:

10/27: 11am Pacific, 2pm Eastern

  • I’m @meriahnichols
  • Use hashtag #UnrestMovie so we can find each other

Facebook Group is Linked Here!

Questions We Will Ask In the Twitter Chat on 10/27 at 11am PST

  1. Roll call: please introduce yourself – if you have a connection with ME or chronic illness, could you please share it with us? Thanks!
  2. How has this film changed your understanding of invisible and chronic illnesses?
  3. What are some of the beliefs you had about ME before watching the film? How did your views change?
  4. Discuss the stigma around ME. Why do you think there continues to be stigma around the illness?
  5. The film features clips from comedians who have made jokes about chronic fatigue syndrome. How does this type of discourse impact the stigma around ME? How do you think it affects patients?
  6. What does Karina’s story tell us about how the stigma around ME can impact patients and their families?
  7. What role does Omar (Jennifer’s husband) play in the film? What were some of the challenges Jennifer and Omar faced as a married couple due to the illness? How did they overcome those challenges? How do you think you would deal with this kind of challenge?
  8. What can happen to a patient (i.e. physically, mentally, emotionally) when their caretakers and loved ones may not believe they are ill?
  9. How can primary caregivers and relatives of a MEpatient be supported?
  10. What are concrete short-term steps that you can take to reduce the stigma against ME? What about long-term steps?
  11. How can you support the ME community in general?

 

All questions are from Jennifer Brea (the director’s) movie discussion guide, linked here.

unrest
image of a woman lying down, face up. her hair is streaming out on the pillow, with electric node things attached to her head. text reads "unrest" and it was a sundance film festival selection

This post is an update on the Lit League Book Club. It talks of the last book read, some of the challenges the club has, and a hint of future plans.

They say that if you fall 7 times, what is most important is that you just get up 8. So, it’s not the falling that counts; it is the trying.

By that measure, this book club should be – and WILL BE!! – a resounding success!

What last happened was: we chose a book (Good Kings Bad Kings, reviewed here). Lots of us read it. It was great. We fell down when we tried to figure out how to talk about the book.

A virtual book club

The thing about the Lit League is that it’s a virtual book club that reads books with themes of disability. It’s by and for the cross-disability community, and with that, there are a lot of people with various disabilities present. Which is interesting! And why we want to do this in the first place – to get all of these really neat perspectives!

It also presents some interesting challenges, like, how do find a format that is accessible for everyone?

The problem is, there really is no perfect access with a myriad of disabilities. Furthermore, I myself am in a weird boat as I’m deaf, I do speak clearly but don’t sign well. I can talk about the book on Facebook live and thanks to some new hearing aids, I can participate well enough in a zoom/skype conversation that I may lead (- and so have control over), but how to translate that to my deaf friends when I don’t sign well and when Facebook hasn’t caught up with live captioning?

Do we go ahead with twitter chats or other chats when some people with some disabilities can’t stand that sort of thing?

Do we do a combination of them, and if so, how can I find the time to do this?

So many questions!

At this point, I expect to continue to try and figure it out, little by little, with everyone’s help and patience. I expect this move forward and for us to learn so much in the process.

I expect that we will be learning a lot more than just about what we are choosing to read, too 🙂

A different tactic

In figuring it out, I’m going to try a different system for the next few months to keep the ball rolling: I’m going to go ahead and make some decisions about books and times and just post them.

We can always tweak this later, but it seems that one of the reasons we are floundering is because there is no real plan in place, not even a plan to adjust or adapt, right?

So, let’s try that out and see if it works. I’ll also slip in some plans for access, and give it all a try.

Look forward to the upcoming book list and calendar – and as always, please send in the titles of the books you love or want to read!

We had a wonderful twitter chat with Joe Shapiro. It was his first time on a twitter chat, and to be honest, it was my first time hosting!

I’ve tried to pull together the pieces of the twitter chat into a Storify – I rearranged as many of the tweets into the relevant questions and sections as possible. It might not all make sense initially, but if you look at the time stamps on the tweets, it helps.

I am grateful that Joe Shapiro talked with us all about his book. I’m excited about his next project (read about it in the Storify!), and will be tuning in for the full story.

If you’d like to join the Lit League (The Riveting Book Club with Disability Intersections), come on over to Facebook by clicking here!

Hey! This is just a really quick post to let you know that The Lit League is voting on the next book for us all to read (and talk about).

Voting is going on over on GoodReads:

It’s anonymous and everyone is welcome.

Come on over.

The Lit League’s bookshelf: read
The Lit League
26 members

A book club that focuses on books related to disability

Books we’ve read


View this group on Goodreads »

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