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Moxie

Why I’m Glad the Doctor Told Me to Abort My Baby with Down Syndrome

In 2009, I went to the hospital for a 14-week scan of the fetus that I was carrying. The scan showed that she had diffuse fetal hydrops - there was fluid separating all of her skin and her body - and holes in her heart. She was given a zero percent chance of being born [...]
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That Time When I Underestimated My Daughter with Down Syndrome…Again

I am not a newbie to the world of disability. I have disabilities myself. I have tons of friends with disabilities. I have worked  in the disability arena. In fact, I was working at UC Berkeley - the home of the disability rights movement - when I had the amniocentesis that told me that my [...]
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In Your Light: To My Daughter (with Down syndrome) on the Occasion of Her 7th Birthday

My daughter, when I woke up on the morning of your birthday, you were awake already. You had slipped out of your bed and headed straight for the art supplies. After I kissed your sweet cheeks good morning (and gave you a hug), you said that the drawing was for me - "see?! MOMMY" Ah! [...]
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Potty Training (with & without Down syndrome)

The Best School Ever said that it’s okay that Moxie isn’t potty trained, they want her (and more stuff like that that has me looking at my toes because I’m always worried I’ll start crying over their total awesomeness). But even with them saying so, I know it’s a good thing to get her on …

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Disciplining My Daughter with Down syndrome

Somehow, somewhere along the line, I stopped disciplining Moxie the same as I discipline Micah, or rather even, the same as I disciplined Micah when he was Moxie’s age. And I don’t know what happened exactly to change that. I suspect that her  inexhaustible appetite for adventure and mischief  had something to do with it – she …

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On This Day

at this moment four years ago, I was in labor, on the ball, on my hands and knees, walking, hanging on to the door frame at this moment four years ago, I was still hoping that the amniocentesis would be wrong. She had had diffuse fetal hydrops (- in which all of her skin was …

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The Road Less Traveled: The Connection Between Travel & Disability

This blog now seems to have an audience that is made up of travelers, people with disabilities and parents of kids with special needs/disabilities. This makes sense to me, because, after all, living life in a unique way is something that all three of these groups have in common, right? Travel We travel to experience …

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The Road Less Traveled: The Connection Between Travel & Disability & Living a Life with Moxie

This blog now seems to have an audience that is made up of travelers, people with disabilities and parents of kids with special needs/disabilities. This makes sense to me, because, after all, living life in a unique way is something that all three of these groups have in common, right? Travel We travel to experience …

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What If Moxie Were Slow?

I came upon Moxie the other day as she was sitting by herself. The ‘Big, Little’ book was open on her lap, her legs outstretched. She was signing the pictures, signing “tree” then signing ‘flower”, turning the page (with a flourish and slam) and signing on. I thought my heart was going to bust out …

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…About That Bit On “Learning to Go Slower” Because You Have a Child With Down syndrome…

Before I had Moxie – when I was searching online for something positive about Down syndrome, something that I could sink into with a sigh of relief, “oh, it’s going to be okay”, I came upon reasons why parents were grateful that they have a child with Down syndrome. Learning to slow down was often …

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