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I Never Knew I Wanted a Child with Down syndrome Until I Had One

What feels like a million years ago, I was on the Baby Center Down syndrome Board. I was immersing myself in the questions, the comments, the endless threads. The talk, the chatter, the crying, the heartache. The “brag”s. One signature struck me in particular, “I never knew I wanted a child with Down syndrome until …

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A Free iPad (for your child with a disability)

We all know apps can be great with kids… but what if your budget doesn’t allow for the purchase of an ipad itself? Here are some no cost options for getting your child (especially, your child with a disability) an ipad. *** Local Resources: Never underestimate the power of local. We ourselves received Moxie’s ipad …

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No Cost Options for Getting Your Child (with a Disability) an iPad

We all know apps can be great with kids… but what if your budget doesn’t allow for the purchase of an ipad itself? Here are some no cost options for getting your child (especially, your child with a disability) an ipad. *** Local Resources: Never underestimate the power of local. We ourselves received Moxie’s ipad …

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Soul Juice

The original title of this post was “If You Don’t Get Depressed, Don’t Read This Post” because I was depressed when I first wrote it and felt like it should be from me – who suffers from depression – to you, who know what it’s about (because you know, you wouldn’t be reading it if …

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… the Post in Which I am a Defenseless Turtle at the IEP/Transition Meeting

So I’m sitting here with a sleeping Mac in my lap. I’m crying over him, big fat tears plopping all over his legs. I’m trying to figure out why exactly I’m so upset. The administrator’s parting comment over Micah reading Rumpelstiltskin (the book he brought along to read on his own during the meeting) rings …

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Choosing Moxie

I. The beginning of my pregnancy with Moxie feels jumbled, as I recollect it now, some 3 years later. It’s a blur of happenings, events moving swiftly upon each other like quick waves that peak in a tsunami. The blur may be due to the events themselves or may be to the way my mind …

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be not scared

I was feeding Moxie the other day, glanced out the window, saw a troup of special-needs kids walk by and lost it. I mean, I lost it. Put down Moxie’s food, head in my hands and bawled. The big, gulping kind of bawl. The damn-I’m-losing-it kind of bawl. Concerned, Micah came around, “why are you …

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