Sara Weir is the President of the National Down Syndrome Society (NDSS), which is the organization that spearheads and financially benefits from the Buddy Walks ®™ . NDSS claims to be the “leading human rights organization for all individuals with Down syndrome,” and yet in the face of the loss of Medicaid, they have been, for…
[vc_row][vc_column][vc_column_text]On January 19, 2017 the National Down Syndrome Society (NDSS) made a statement on their public Facebook page reporting they had met with Betsy DeVos, the nominee for Secretary of Education. This meeting and this post happened in the absence of any prior statements decrying her nomination. It perhaps goes without saying that DeVos’ nomination…
When we first received our son’s Down syndrome diagnosis in August of 2011, we were devastated, terrified and lost. During a routine anatomy scan, the technician noticed an abnormality in our son’s heart, so we were sent for an immediate fetal echo. It was then confirmed that he had two separate congenital heart defects (ASD…
I have no doubt that this post is going to make me seem like a great queen bitch, but yesterday was Martin Luther King Jr Day, and as he so famously said, “our lives begin to be over the day the we are silent about things that matter.” One thing that matters a lot…