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Why I’m Glad the Doctor Told Me to Abort My Baby with Down Syndrome

In 2009, I went to the hospital for a 14-week scan of the fetus that I was carrying. The scan showed that she had diffuse fetal hydrops - there was fluid separating all of her skin and her body - and holes in her heart. She was given a zero percent chance of being born [...]
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The Impact of Disability on Siblings : The Story of Dana and Meriah

Here is the story of growing up with my brother Dana, first published on March 12, 2012. Dana left this world on Labor Day, 2016. ________________________________________________________________ I went through the windshield of a car when I was four years old, back in the day when seatbelts were charming accessories. The glass shredded my face, the head-on collision …

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Why Frida Kahlo Remains Relevant

“Oh my God!”, Mikey exclaimed as he read about Frida Kahlo for the first time, “she’s like someone you would be crazy about; a painter AND disabled!” Later he added that if she were alive, I’d probably be stalking her. I started my “Frida Period” when I lived in Tucson, Arizona about 20 years ago. I …

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Disability: Connections, Comforts & Judy Heumann

Judy Heumann …is an attractive woman, perhaps a smidgen above middle-aged. An aura of authority and intelligence is around her, her voice is crisp, clear, firm. She is a strong woman and it shows. She is also one of the early leaders of the disability rights movement. She affected change on a level that grew …

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Choosing Moxie: A Birth Story About Disability and Bravery

  I. The beginning of my pregnancy with Moxie feels jumbled, as I recollect it now, some 3 years later. It’s a blur of happenings, events moving swiftly upon each other like quick waves that peak in a tsunami. The blur may be due to the events themselves or may be to the way my mind works – I [...]
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