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Disclosure: There are some affiliate links below, but these are all products I highly recommend. I won’t put anything on this page that I haven’t verified and/or personally read. Please read my disclosure page for more info.


Down syndrome Book Resources: some parents feel like they can never get enough.

That makes sense, given the fact that Down syndrome is still not fully understood, and that for most of us parents, our child with Down syndrome is our entry into the world of Down syndrome, Development Disability and sometimes Special Needs*(see note below).

Our child is our guide, and wanting to understand more, we seek out all of the books we can get our hands on.

I myself purchased or reviewed all of the books listed below.

The ones that I most highly recommend I have put an * before.

Your local library should offer most of these books, and/or your local Down syndrome Association.

Most are also easily available through Kindle (on Amazon) or Nook (Barnes and Noble). The medical/education books may be available through your child’s school or you can request them to purchase it as a part of your child’s IEP.

Please add your own recommendations in the comments.

Down syndrome Book Resources

Practical/Skills/Training/Medically Oriented

Supporting Positive Behavior in Children and Teens with Down Syndrome

Gross Motor Skills in Children With Down Syndrome: A Guide for Parents and Professionals 

Fine Motor Skills for Children With Down Syndrome: A Guide for Parents And Professionals 

Teaching Children with Down syndrome About Their Bodies, Boundaries and Sexuality

Early Communication Skills for Children with Down Syndrome: A Guide for Parents and Professionals

Babies with Down Syndrome: A New Parents’ Guide

http://downsyndromepregnancy.org/the-pregnancy-book/ – free downloadable book + ripping site with resources

Education

Teaching Math to People with Down syndrome and Other Hands-On Learners

Teaching Reading to Children with Down syndrome: A Guide for Parents and Teachers

 

Collections

The Parent’s Guide to Down syndromeAdvice, Information, Inspiration, and Support for Raising Your Child from Diagnosis through Adulthood

Reasons to Smile: Celebrating People Living with Down Syndrome

Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives – 10th Anniversary Edition (updated, with more stories) – this is a MUST-read

Gifts 1: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives

Gifts 2: How People with Down Syndrome Enrich the World

 

Memoirs/Personal Stories

* Up Syndrome (a memoir by a woman with Down syndrome)

The Year My Son and I Were Born: A Story of Down Syndrome, Motherhood, and Self-Discovery

Expecting Adam: A True Story of Birth, Rebirth, and Everyday Magic

The Shape of the Eye: Down Syndrome, Family, and the Stories We Inherit

Life with a Superhero

From Grief to Celebration, How One Family Learned to Embrace the Gift of Down Syndrome

Sun Shine Down

Good and Perfect Gift, A: Faith, Expectations, and a Little Girl Named Penny

Road Map to Holland: How I Found My Way Through My Son’s First Two Years With Down Syndrome

Choosing Naia: A Family’s Journey

My Heart Can’t Even Believe It: A Story of Science, Love and Down syndrome

 

Fiction:

The Unfinished Child

 

Read Book Reviews:T21 Writers Alliance

____________________

* Note: “Special needs” and “disability” are commonly used interchangeably. This is incorrect.

A “special need” is an educational term referring to an individual’s unique educational need, as defined through an IEP. A “disability” is a way of seeing, hearing, speaking, thinking, behaving, moving, feeling that is less common than most. A person may have a “special need” and no disability; likewise a person may have a disability and no educational “special need”.

The words are NOT interchangeable, and the word “disability” is not a bad word. Please use it to refer to your child’s Down syndrome, and use “special need” to refer to their unique educational needs, if any.

******************************************************

Direct  Amazon Shop for Down syndrome-Related Books :

 

Down syndrome book resources for parents of people with Down syndrome

We all know apps can be great with kids… but what if your budget doesn’t allow for the purchase of an ipad itself? Here are some no cost options for getting your child (especially, your child with a disability) an ipad.

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Local Resources:

Never underestimate the power of local. We ourselves received Moxie’s ipad from a local organization that my friend Mari told us about, the  The Shelby Clark Memorial Fund.

They were absolutely wonderful.

I contacted them off of their website, applied for a grant in honor of Shelby Clark, a beautiful little girl that passed away too soon.

We are deeply grateful to the Clarks for giving Moxie her ipad and try to honor the memory of their child.

Other Local Resources:

Rotary/Kiwani/Lions Club: your local business club is likely to have an outstanding commitment to championing education –  it might be a simple matter of asking if that commitment also covers ipads, which are used to help develop communication and cognition. If they don’t, encourage them to start one – with your child being the first recipient!

Cross Disability Organizations:  United Cerebral Palsy, Easter Seals, etc. They might have a fund to tap into, or they might know of one.

Lending Libraries:  Here in the Bay Area,  the Center for Accessible Technology’s ipad project for people with speech disabilities, lends out ipads for specified periods of time. Check out your local libraries/non profits to see if similar projects are happening that you can tap into.

Non Profits: Speaking of non profits, check in with your  local Center for Independent Living about options. I know the CIL in Berkeley has a lot of resources and knowledge – make sure to talk to the person who works more with funding/grants/technology.

Word Out: Family and friends are traditionally the source for most of our information and contacts. Spread the word that you are looking and that your child would really benefit from an ipad. Ask your people to keep their eyes peeled and ears open.

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Organizations:

I was going to do a write up on A4CWSN -Apps for Children With Special Needs – include information on their apps, an interview with Gary James, the founder, and of course, information on how to enter to win a free iPad.

It seems, however, that there is a situation with A4CWSN . They are being investigated by the Attorney General of the state of Connecticut. That sucks in and of itself, but the part that really stinks is the founder deletes questions on his facebook page and attacks people that question him or what is going on.

So saying this, there are still people that have received ipads from the organization. I guess this is one of those potential sinkholes that you can navigate at your own risk. All links and information follow – you make your own call.

General website: Apps for Children with Special Needs

About the investigation: Contact information for the man in charge of the AG investigation. Terence Zehnder, Special Investigator, Trade Practices Division, Department of Consumer Protection: terence.zehnder@ct.gov

ph.(860) 713-6130 fax (860) 706-1315

Sites related to the investigation:
http://a4anon.blogspot.com/
http://a4cwsnsurvivor.blogspot.com/

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Moving On:

I just want to encourage other folks out there that might really want to get an ipad for their child (with or without a disability). Even if you have a low income, it shouldn’t stop you. Spend time googling local resources, organizations. Even unexpected ones, like those mentioned above.

Tell people you are looking, keep all doors open. It’s definitely possible.

There are also a million and two fundraising ideas floating around pinterest – you can even have bake sales to raise the money, a tip jar at work and so forth. It all counts and it all adds up. But that’s probably the subject of another post.

If you know of other resources, please leave them in the comments here so that everyone can read and learn.

photo 2Most of all, I think it’s important to keep a very positive outlook: BELIEVE it can happen, really believe that your child will receive what s/he needs to learn and that it’s simply a matter of finding the organization that is the best fit for your child, knock on doors and let them open.

Good luck.

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