wreath on a wall in budapest

It Took a Deaf Lady in Budapest

This is a photo-heavy travel post about Budapest I was fascinated by so much that I saw in Budapest. The grocery stores, markets, food marizipan shop holding that marzipan gyros! gelato cheetos! langos meat at the market hungarian langos my kids were so excited mini market meats gyros! hungarian chipschips breads at the mini market ...

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access in Holland - at the train station

Disability Access in Holland

This is a travel post about physical access in Holland (the Netherlands). It includes opinion about Dutch euthanasia, eugenics and the differences between the Netherlands and the United States with regard to disability rights and access. You know how you don't really miss something you've never had? Like, you kind of bumble around life, stumble ...

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welcome to holland: moxie in a park with a can of orange juice

Welcome to Holland

This is a travel post. In the Down syndrome community, there is a famous missive called, "Welcome to Holland." It was written in the 80's by Emily Perl Kinglsey (who was a writer at Sesame Street - you can thank her for a lot of the inclusion that went on there). A lot of people ...

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image of two women and three children, all are smiling, light skinned and wearing bright clothes

We Are Going to Europe!

First of all, let me jump and down and squeeeeeeeel: we are going to Europe!!we are going to Europe!!we are going to Europe!! !!!!!!!! Here are the nuts and bolts: My mom is taking the kids and I on a Heritage Tour: we're going to go to all of the places where her family is ...

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Taking a Page from the Coneheads

Mikey and I decided to introduce the children to that great American classic, “The Coneheads“. Okay, that kind of came out like a pre-thought thing – it was more like he was surfing movies with Micah, they started watching it and I caught wind of it and was all, “WAAAAAIT!!! I LOVE THE CONEHEADS!!!” – …

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Travel. Poop. And Special Needs

I want to make this really simple. This post is about travel, poop and having a child with special needs.

Do yourself a favor and don't read it if you don't have kids. Mm'kay? Just head on down the list of posts and read something else that might make more sense for you.

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One of the most common issues for kids with Down syndrome point blank is constipation. It's probably the most frequent question that pops up on all Down syndrome boards, spilling over into the general special needs community forums. Everyone has this issue with their kid(s), at one time or another. Everyone.

And then, when you travel, it's compounded. I don't know what it is, but something about a changed diet, a shift from routine? Whatever it is, not just my Moxie – who has Down syndrome – but typically developing Micah as well – have bowel issues.

I have long advocated for coconut oil, placed directly in food. It's easy, it tends to work well. Any oil, really, but pure, organic coconut oil or coconut butter worked really well for my child.

Probiotics are also magical. I feed my kids probiotic-rich yogurt nearly daily, but definitely a few times a week. It really helps.

But what to do when travelling? What do do when you are out on the road and can't find probiotic-rich yogurt, when it's just not feasible or possible to bring along the coconut butter?

Enter: Culturelle Kids!

This is what they are: a portable pill/powder (depending on your child's weight) that will help support digest and boosts overall digestive health and provides ongoing maintenance for a healthy digestive tract. In a nutshell: it helps your child poop well by releasing those priobiotics.

It's recommended by pediatriciants, trusted by parents.

For me, the main pieces were really that I knew that I had something with a solid reputation and track record on hand while travelling to keep the kids regular in lieu of their typical yogurt. Like I said, it's portable. It's super easy. You can just bring a box or two with you and that's that.

Share!

– Have you used Culturelle Kids? Did your little ones like it? (mine think it's candy…)

– What do you do to keep your child regular if you have problems? What's worked for you and yours?

 

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Disclaimer:  I was compensated for this post and provided with Culturelle samples.  All opinions provided are my own. Of course. I'd never fake something like this, involving our kids.

 

dreaming big

Someone once said that to be truly happy in this life, you need to love, you need to be loved and you need to have something to look forward to. I don't know how true that it for you, but it's pretty spot-on for me. I find that I slip-slide into dark murky places my soul has no business lingering when one of those three is lacking. Most especially when all three were (as they were for most of my twenties).

But now, the golden trio are mine, in spades. I love. I am loved. And I look forward to biting into my big, juicy dreams.

These are the dreams:
I want to learn all I can about homesteading, actually be good at it. Know my soil ph and nitrogen when to plant the cool-weather crops and how to make hanging gardens and all that good stuff. Know how to raise my poultry, skin the rabbits. Have divine recipes up my sleeve for our fresh eggs and meat. Drum up wickedly yummalicous batches of cheese.

And I want to travel – I want us to have a truck and a trailer. The truck, I'm thinking a '94 or '95 Ford F150 XLT (4×4); the trailer, something suitably vintage, that we've happily tricked out to our hearts' delight. The point of the travel is to find a place to have our Inn – bed and breakfast – and also just for fun, explore this here land mass we stride upon. And by "land mass" I mean the Americas: north, south and central.

For the Inn – this is what I dream of: a large house that looks like the Cohen-Bray place in Oakland. With lots and lots of land surrounding it. Upon that land I'd like a kitchen garden and larger farm. A small barn for bicycles and bicycle maintenance classes. Another barn for our cow (s) and perhaps goat(s). A large chicken coop. Rabbits. Yet another barn for an art studio.

I want us to offer training for those with (developmental) disabilities in the hospitality industry, farming and/or bicycle maintenance. I want us to offer bicycle tours.

With the Inn, I don't want a lot of rooms – perhaps 5 – and I want each room to be completely unique, with a theme. I want our food to come primarily from our garden; the eggs, milk and cheese to be made by our own hands.

This dream, percolating for so long in my mind, my heart, simply gains clarity with time. Where I could only once just see bits and pieces of it, I can now see most of it – it's all neatly integrated, like a gorgeous puzzle that makes sense. This would be our place, a place for Moxie (should she need one), a business for our kids to have and hold if they choose. It would be a venture that would fully utilize the combined talents and passions of Mikey and myself. A place where our parents can come and live, be with us and grow old. Especially our mothers, Mikey's and mine.

I once wanted to have this Inn in South America: Peru or Bolivia. Now, I'm not sure. The pull of family is strong – I want nothing more sometimes than to be able to open my kitchen window and holler that I need me some flour (or something) and one of Dana and Toni's tribe will pop by, cup in hand. I want my kids to grow up rooted with family, knowing in a way I never did that they belong.

These are the bits that are not neatly arranged in the dream-puzzle yet. The where's. And the which-comes-first: the trip or the Inn. I don't put much energy to these questions, however, as I firmly believe in this new incarnation that if I follow what makes us most happy, it will all come together most nicely. It's useless to bend over backwards trying to answer questions that will answer themselves if they are just given some time.

I lay the pieces I know together, study them, enjoy the picture that is forming. I spend time trying to develop the skills that will help me form the next pieces.

I dream. Big.

 

And. Why not? Isn't that what this is all about?